Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Guillian Barre?

curiousgeorge

By curiousgeorge
in Related Issues & Disorders

Recommended Posts

curiousgeorge Rookie
curiousgeorge
Posted

Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


henny Explorer
henny
Posted

not that I know of.

also, as far as I know, GBS is not genetically inherited. of course, not a whole lot is known about GBS and what causes it yet, so this may turn out to be the case.

who in your family suffered with GBS? my sympathies to them and those close to them. it's a terrifying ordeal to go through....I hope they recovered well!

mslee Apprentice
mslee
Posted

I don't know if there is any other link besides that both are autoimmune. I believe I read they think there could be a link between G.B and Lupus...which is also autoimmune. I have recently learned that with one autoimmune condition there are usually others. My Dr thinks the celiac made my immune system go crazy and start attacking all systems...and that treating the celiac will allow my body to heal.

Don't panic or worry but it may be something to keep an eye on.

autoimmune conditions: Open Original Shared Link (info link)

curiousgeorge Rookie
curiousgeorge
Posted
  • Author

It was my aunt. It was a long time ago and she was fine after being completely paralyzed for a good three months. She is old and frail now but not from that. She now has dementia issues and it had me wondering if GBS would be linked. I'm 99% sure my mother had celiac and I think its rampid in y mothers family.

  • 2 weeks later...
henn Newbie
henn
Posted
Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

curious george,

I had Guillian Barre in my early 20's. I am now almost 50 and I have celiac disease. I was diagnosed 5 years ago with celiac, but suffered for years before being diagnosed. My episode with Guillian Barre was one I will never forget. I was also paralyzed for 3 months and had to learn to crawl again and finally to walk. I recovered completely, except for weak reflexes in my ankles and knees.

One of my doctors told me that research is being done to study the relationship between the 2 autoimmune syndromes. Because I have experience both, I tend to believe that there may be a connection.

I know of no one else in my family that had Gullian Barre or has been diagnosed with celiac.

henn

  • 1 year later...
gf Mel Newbie
gf Mel
Posted

I know this is an old post, but I am also looking for info linking GBS to Celiac. My nephew was just diagnosed as Celiac right around the time I was having issues with my thyroid. A quick look at my life showed that I am possibly Celiac (without the obvious stomach problems). I had a severe case of GBS when I was in college, and I also have/had several autoimmune disorders and diseases. Looking back, we are pretty sure that my grandfather was Celiac, and several of the suspected linked autoimmune disorders run in that side of the family. I found a few references to articles that discuss a possible link, but I haven't been able to read them yet. Since this is an old post, does anyone know of new info?

mommida Enthusiast
mommida
Posted

Hi gfMel,

I am so sorry I am running out of time to give you a proper informational post.

If I am remembering right, HLA gene + auto-immune search should find some articles with a possible GBS and Celiac connection.

I have to run out the door. :blink: I don't even know when I will have a chance to even look at the computer again. Possibly on Monday, so PM me if you further questions I might be able to help with.

(or Jegstar is a research junkie, and might look all this info up and post you some links!) :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

No real HLA association

Open Original Shared Link

Open Original Shared Link

gf Mel Newbie
gf Mel
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

Thanks! I really appreciate it! I found that one, but I didn't know if there were any others. Considering the rarity of GBS, I am usually lucky to find anything. I started seeing Celiac symptoms 1-2 years after recovering from GBS, but I didn't start connecting the symptoms until February of this year. I didn't think to even try to connect celiac disease with GBS until this week. I am not sure if I even think there could be a connection, but, then, they know so little about GBS. I guess pretty much anything is possible.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.