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Celiac And Guillian Barre?

curiousgeorge

By curiousgeorge
in Related Issues & Disorders

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curiousgeorge Rookie
curiousgeorge
Posted

Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

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henny Explorer
henny
Posted

not that I know of.

also, as far as I know, GBS is not genetically inherited. of course, not a whole lot is known about GBS and what causes it yet, so this may turn out to be the case.

who in your family suffered with GBS? my sympathies to them and those close to them. it's a terrifying ordeal to go through....I hope they recovered well!

mslee Apprentice
mslee
Posted

I don't know if there is any other link besides that both are autoimmune. I believe I read they think there could be a link between G.B and Lupus...which is also autoimmune. I have recently learned that with one autoimmune condition there are usually others. My Dr thinks the celiac made my immune system go crazy and start attacking all systems...and that treating the celiac will allow my body to heal.

Don't panic or worry but it may be something to keep an eye on.

autoimmune conditions: Open Original Shared Link (info link)

curiousgeorge Rookie
curiousgeorge
Posted
  • Author

It was my aunt. It was a long time ago and she was fine after being completely paralyzed for a good three months. She is old and frail now but not from that. She now has dementia issues and it had me wondering if GBS would be linked. I'm 99% sure my mother had celiac and I think its rampid in y mothers family.

  • 2 weeks later...
henn Newbie
henn
Posted
Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

curious george,

I had Guillian Barre in my early 20's. I am now almost 50 and I have celiac disease. I was diagnosed 5 years ago with celiac, but suffered for years before being diagnosed. My episode with Guillian Barre was one I will never forget. I was also paralyzed for 3 months and had to learn to crawl again and finally to walk. I recovered completely, except for weak reflexes in my ankles and knees.

One of my doctors told me that research is being done to study the relationship between the 2 autoimmune syndromes. Because I have experience both, I tend to believe that there may be a connection.

I know of no one else in my family that had Gullian Barre or has been diagnosed with celiac.

henn

  • 1 year later...
gf Mel Newbie
gf Mel
Posted

I know this is an old post, but I am also looking for info linking GBS to Celiac. My nephew was just diagnosed as Celiac right around the time I was having issues with my thyroid. A quick look at my life showed that I am possibly Celiac (without the obvious stomach problems). I had a severe case of GBS when I was in college, and I also have/had several autoimmune disorders and diseases. Looking back, we are pretty sure that my grandfather was Celiac, and several of the suspected linked autoimmune disorders run in that side of the family. I found a few references to articles that discuss a possible link, but I haven't been able to read them yet. Since this is an old post, does anyone know of new info?

mommida Enthusiast
mommida
Posted

Hi gfMel,

I am so sorry I am running out of time to give you a proper informational post.

If I am remembering right, HLA gene + auto-immune search should find some articles with a possible GBS and Celiac connection.

I have to run out the door. :blink: I don't even know when I will have a chance to even look at the computer again. Possibly on Monday, so PM me if you further questions I might be able to help with.

(or Jegstar is a research junkie, and might look all this info up and post you some links!) :D

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Jestgar Rising Star
Jestgar
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

No real HLA association

Open Original Shared Link

Open Original Shared Link

gf Mel Newbie
gf Mel
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

Thanks! I really appreciate it! I found that one, but I didn't know if there were any others. Considering the rarity of GBS, I am usually lucky to find anything. I started seeing Celiac symptoms 1-2 years after recovering from GBS, but I didn't start connecting the symptoms until February of this year. I didn't think to even try to connect celiac disease with GBS until this week. I am not sure if I even think there could be a connection, but, then, they know so little about GBS. I guess pretty much anything is possible.

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