Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Dh Similar To This...?


GravStars

Recommended Posts

GravStars Contributor

I do not know yet for certain if I have celiac disease or not, so I do not know if what I have is DH. But I literally cannot find a picture of DH online that looks like what I get, which are small reddish bumps mostly on my upper arms, sometimes forearms, abdomen, back and legs. I usually only have 1 or 2 at a time on each arm, 3 or 4 at the most. They are not pus-filled. They itch but not painfully, and sometimes they don't itch at all. They seem to itch the most when a new one appears, then it dies down after a few days. On one occasion recently I woke up with one on my leg that had a kind of hot, burning sensation, but I after I fell back asleep and woke up again the burning was gone and I've never experienced that before or since. They cannot be bug bites because I've had them consistently for 2 years and while living in 2 different houses/cities and with no exposure to anywhere I'd get ticks, chiggers, etc.

Does anyone have a mild DH that is similar to that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

DH doesn't usually have pus unless it gets infected. It will sometimes have a clear fluid and for me that fluid would seem to burn the surrounding skin when my DH was at it's worst.

You might want to see a derm and request a biopsy specifically for DH. Some derms are not familiar with the fact that you need to biopsy next to the lesion not the lesion itself. Here is link you can print and give to him if he seems to be going for the wrong place.

Open Original Shared Link

GravStars Contributor

Thanks. I don't have a job or insurance so I can't see a doc right now, which is why I asked here. I don't know what else it could be except hives (but it doesn't look like pictures of hives either) or a food intolerance/reaction.

kakaiba Rookie
DH doesn't usually have pus unless it gets infected. It will sometimes have a clear fluid and for me that fluid would seem to burn the surrounding skin when my DH was at it's worst.

You might want to see a derm and request a biopsy specifically for DH. Some derms are not familiar with the fact that you need to biopsy next to the lesion not the lesion itself. Here is link you can print and give to him if he seems to be going for the wrong place.

Open Original Shared Link

hi!

i have been diagnosed with DH 2 years ago, i've had a skin biopsy, but my dermatologist got the lesion itself...anyway, i have been in a gluten-free diet ever since, i had been on corticostiroid for 1 year and now 1 year without any oral meds... i could not say that iam totally free from blisters, i always have them, i always put floucinolone cream 05% with tea tree oil with my"minimal blisters" they always appear on my legs(its a part of my everyday regimen hahaha).

well, just need help, i still have my worries, should i visit an enterologist, have a blood test, have an endoscopy..

i'm leaving here in the Philippines, i feel alone, DH is new here, i have to explain everything to all, why i cannot eat this and that... my dermatologist just gave me a gluten-free list... i rely on internets... good thing i found this site...guess i just need someone to talk to...

thanks for reading!

harp1 Apprentice

Keep talking, support is really important. Feel free to PM me. Susan

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    jan ohlson
    Newest Member
    jan ohlson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.