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Anyone Have Dh Similar To This...?

GravStars

By GravStars
in Dermatitis Herpetiformis

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GravStars Contributor
GravStars
Posted

I do not know yet for certain if I have celiac disease or not, so I do not know if what I have is DH. But I literally cannot find a picture of DH online that looks like what I get, which are small reddish bumps mostly on my upper arms, sometimes forearms, abdomen, back and legs. I usually only have 1 or 2 at a time on each arm, 3 or 4 at the most. They are not pus-filled. They itch but not painfully, and sometimes they don't itch at all. They seem to itch the most when a new one appears, then it dies down after a few days. On one occasion recently I woke up with one on my leg that had a kind of hot, burning sensation, but I after I fell back asleep and woke up again the burning was gone and I've never experienced that before or since. They cannot be bug bites because I've had them consistently for 2 years and while living in 2 different houses/cities and with no exposure to anywhere I'd get ticks, chiggers, etc.

Does anyone have a mild DH that is similar to that?

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ravenwoodglass Mentor
ravenwoodglass
Posted

DH doesn't usually have pus unless it gets infected. It will sometimes have a clear fluid and for me that fluid would seem to burn the surrounding skin when my DH was at it's worst.

You might want to see a derm and request a biopsy specifically for DH. Some derms are not familiar with the fact that you need to biopsy next to the lesion not the lesion itself. Here is link you can print and give to him if he seems to be going for the wrong place.

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GravStars Contributor
GravStars
Posted
  • Author

Thanks. I don't have a job or insurance so I can't see a doc right now, which is why I asked here. I don't know what else it could be except hives (but it doesn't look like pictures of hives either) or a food intolerance/reaction.

kakaiba Rookie
kakaiba
Posted
DH doesn't usually have pus unless it gets infected. It will sometimes have a clear fluid and for me that fluid would seem to burn the surrounding skin when my DH was at it's worst.

You might want to see a derm and request a biopsy specifically for DH. Some derms are not familiar with the fact that you need to biopsy next to the lesion not the lesion itself. Here is link you can print and give to him if he seems to be going for the wrong place.

Open Original Shared Link

hi!

i have been diagnosed with DH 2 years ago, i've had a skin biopsy, but my dermatologist got the lesion itself...anyway, i have been in a gluten-free diet ever since, i had been on corticostiroid for 1 year and now 1 year without any oral meds... i could not say that iam totally free from blisters, i always have them, i always put floucinolone cream 05% with tea tree oil with my"minimal blisters" they always appear on my legs(its a part of my everyday regimen hahaha).

well, just need help, i still have my worries, should i visit an enterologist, have a blood test, have an endoscopy..

i'm leaving here in the Philippines, i feel alone, DH is new here, i have to explain everything to all, why i cannot eat this and that... my dermatologist just gave me a gluten-free list... i rely on internets... good thing i found this site...guess i just need someone to talk to...

thanks for reading!

harp1 Apprentice
harp1
Posted

Keep talking, support is really important. Feel free to PM me. Susan

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