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Article: Terrible Disease Found To Be Common


angel-jd1

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angel-jd1 Community Regular

This is one of the best articles I have read in quite a while. Has tons of info in one short article. -Jessica :rolleyes:

Posted on Sat, Mar. 19, 2005

Terrible disease found to be common

JOE GRAEDON and TERESA GRAEDON, Ph.D.

Knight Ridder Tribune News Service

Graduating medical students are sometimes told: "Half of what we have taught you is wrong . . . we just don't know which half." As amusing as this sounds, it rings true for a complex condition called celiac disease.

For decades medical students were taught that celiac disease is rare, that it affects the digestive tract and that afflicted children grow out of it. All these myths have now been disproved.

Celiac disease was once thought to affect only one child in 5,000. That would make it so uncommon that few doctors would ever make the diagnosis. With such statistics, a pediatrician might see a handful of cases in a lifetime.

But now researchers have found that celiac is actually quite common, affecting one person out of 100. Because genetics play a role, a person with a family member who has celiac disease has one chance in 22 of being affected.

Millions of Americans are afflicted, but most don't even know it. It might take years or even decades for the problem to be diagnosed. By then, it could be too late to undo the damage.

In celiac disease, the immune system reacts to a protein called gluten found in wheat, barley and rye. This triggers an inflammatory response in the small intestine that can interfere with efficient absorption of nutrients. Early recognition of digestive-tract involvement led doctors to pay attention to symptoms such as stomachaches and diarrhea.

But many patients diagnosed with irritable bowel syndrome might not realize that their discomfort could be due to celiac disease. One study found that 12 percent of patients with IBS were gluten-intolerant.

Many patients don't have classic symptoms, however. Chronic fatigue and anemia that can't be attributed to other causes might well be signs of celiac disease. Other immune conditions, such as type-1 diabetes and thyroid disease, may be associated with celiac disease. A chronic, itchy rash known as dermatitis herpetiformis is another odd sign of an immune reaction to gluten.

People with gluten intolerance cannot absorb adequate amounts of calcium, magnesium, iron or other essential nutrients from food. As a result, their bones become weak and brittle.

New research shows that celiac disease is common among adults with osteoporosis, affecting more than three in 100 (Archives of Internal Medicine, Feb. 28, 2005). The investigators conclude that anyone diagnosed with osteoporosis should be screened for celiac disease.

Debilitating neurological disorders may also signal celiac disease. Some patients might appear to have early-onset dementia. Others experience chronic migraine or peripheral neuropathy (pain, tingling or burning in feet or hands).

For readers who would like to learn more about celiac disease, we offer a celiac disease of a one-hour radio interview with one of the world's leading experts. The show provides information on diagnosis and treatment. It is available for $15 from the People's Pharmacy (celiac disease-455), P.O. Box 52027, Durham, NC 27717-2027.

Many physicians practicing medicine today never learned about the range of problems celiac disease can cause. With evidence mounting that it is common, patients deserve to be tested. For those who are affected, a strict gluten-free diet can prevent many complications.

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celiac3270 Collaborator

That is a very good article--describes some general symptoms--some not so common ones--how common it really is and why it was never diagnosed...and its tie to osteoporosis, anemia, IBS...you're right--it's one of the better articles we've seen.

Carriefaith Enthusiast

That article is awesome! Now if only every GP and GI doctor could read it....

celiac3270 Collaborator

These two articles were from yesterday...not very good, but interesting to compare them to such a good article:

Open Original Shared Link -- this article said that people in Celiacs, the body treats gluton, a protein found in wheat like poison.....no reference to barley, rye.... :D

Open Original Shared Link -- Can't really blame this person for not being as informative as in the other article; the celiac disease information is in an "Ask the Doctor" section.

celiac3270 Collaborator
That article is awesome! Now if only every GP and GI doctor could read it....

I know! This is the type of article I would print out for people who don't understand, but are interested in learning more--or for regular doctors who don't know about celiac--or for confused relatives.......

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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