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lmk

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lmk Newbie
lmk
Posted

I need some advice. After pregnancy, I quickly lost weight and was down to 114 lb at 5'7". An initial Celiac test showed elevated IGA (41), but no TTG. Endoscpy with biopsy negative, colonoscopy normal. I was gluten free for 2 weeks before my colonoscopy, because I felt so bad. Then I started eating gluten again in order to get accurate results for upper endoscopy. I ate everything and felt absolutely fine. Month and a half later, I started feeling bad again, with the pale stools. A blood test (comprehensive celiac) showed everything normal - even the IGA was 1. Capsule endoscopy - very healthy small intestine per the GI. Ultrasound of abdomen was normal.

I decided to try gluten-free because I can't live with the constant diarrhea....etc.

So, my husband thinks I shouldn't be trying anything until I get diagnosed. He thinks partially it's in my head, but I'm wondering if my anxiety level has increased BECAUSE of gluten intolerance. I'm wondring about the wisdom of getting possibly sicker until I get diagnosed. Not diagnosed - always that doubt and harder for others to take me seriously - especially as far as cross contamination. And let's be honest, I do want to visit other people's houses and have a life; so I need for other people to realize that cc is serious. Also, if there are any clinical trials, etc...they require you to be dignosed (not self diagnosed).

Now, if I'm diagnosed and I'm self-insured, can this be a problem for getting insurance in the future?

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