Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eas Myoplex Beware


Jeremiah

Recommended Posts

Jeremiah Apprentice

I don't want anyone else to get burnt by EAS. For years now they have claimed their product is gluten-free, even though it is not, it contains oats. Is there any way to stop a company like this from making false claims?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

What makes oats not gluten-free is cross-contamination. So, technically they are not using gluten ingredients but unless manufactured in a dedicated facility, the oats do have gluten on them. It is a fine line and they should defiantly not say they are gluten-free if they have cross-contaminated oats.

tarnalberry Community Regular

actually, it's not even quite true to say that it's only cross contamination that makes oats gluten free. oats are a more complicated question than just that.

gluten - *technically* - is the protein in a grain. period. celiacs have somewhat usurped the world to refer to only specific glutens, rather than all of them, but technically speaking, all grains have gluten - which is why you can see "corn gluten" on a package, and you don't have to worry that you're going to get sick, as a celiac, from it.

gliadin (the wheat gluten), horedin (the barley gluten), and secalin (the rye gluten) (and I may have switched the barley and rye gluten), are all known to cause the autoimmune response in celiacs. they all have the same 33-mer, the same section of 33 amino acids lines up and folded the same way that our body sees as badness.

avenin (the oat gluten), has a very similar segment of amino acids in it. approximately 10% of celiacs have an immune system that says "eh, close enough" and *also* has the exact same autoimmune response to oats. it's *not* cross contamination that they are reacting to, it's the protein itself. (there are a number of articles on pubmed from research on this where the researchers used oats grown in their own labs under very controlled conditions.)

imho, oats should be included in labeling considerations since *some* celiacs do react to them. but selling oats that are marketed as free of cross contamination is a good thing as well, for the majority of celiacs who do not.

either way, this issue - oats - is one reason why it is, also imho, VITAL to NEVER trust "gluten free" labels, and always read the ingredient list.

Jeremiah Apprentice
What makes oats not gluten-free is cross-contamination. So, technically they are not using gluten ingredients but unless manufactured in a dedicated facility, the oats do have gluten on them. It is a fine line and they should defiantly not say they are gluten-free if they have cross-contaminated oats.

6 years ago when I played basketball in college EAS claimed their Myoplex was gluten free, yet I would get cramped up and my brain felt like cabbage and I couldn't explain why. After several months, I quit taking their shakes and both symptoms went away. I would warn all celiacs beware, their products are NOT gluten-free. There is little more frustrating than believing you are eating gluten free and still feeling terrible. If this is happening to you, I'd suggest an elimination diet, I've found out too many times you can not trust the company's statements. Since they're not getting sick and their selling product they really don't care. (or at least it feels that way sometimes)

brigala Explorer

Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

Jeremiah Apprentice
Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

A great many celiacs, are not aware of all the possible pit-falls out there. (Especially new ones) They hear gluten-free and the instant assumption it is safe. (They don't have time to troll the boards looking for the absolute definition of gluten-free, which includes oats in most definitions) So they go on believing they are eating gluten-free, but don't understand why they are having problems. This post is for those people. I respect your opinion and you can say we respectfully agree to disagree.

tarnalberry Community Regular
Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level.

I'm looking for a label that means "celiac safe" not "90% celiac safe". :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeremiah Apprentice
The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level.

I'm looking for a label that means "celiac safe" not "90% celiac safe". :)

I agree, most people with celiac disease, read gluten free and trust that it is. Unaware about the potential for oats to be harmful to them, in so called "gluten-free" declared foods.

bakingbarb Enthusiast
I agree, most people with celiac disease, read gluten free and trust that it is. Unaware about the potential for oats to be harmful to them, in so called "gluten-free" declared foods.

I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

brigala Explorer
I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

It sort of depends on how you look at it.

The gluten in oats is not the same as the gluten in rye, barley, and wheat. It's not unusual for a Celiac to react to oat gluten as if it were wheat gluten.

Rice, corn, and all other grains also contain gluten, but it is very different from wheat gluten. It is much more rare for Celiacs to have problem with rice gluten or corn gluten, so these aren't really considered "gluten" in the sense that relates to Celiacs.

For someone who has trouble with the gluten in oats, which is a substantial minority of Celiacs, anything with oats should not be considered gluten-free even if it says gluten-free on the package.

But, for those of us who have no problem with oats, there are many products out there that contain oats which come from dedicated sources (eliminating the possibility of contamination with wheat, rye, or barley gluten, which is the main problem with oats for most Celiacs).

Obviously from this thread, my opinion on this differs from that of some of the other people here. I eat oats and products containing oats if they are certified gluten-free; but I avoid oats that are not certified gluten-free because of the high degree of cross-contamination in oats. If there weren't oat-containing foods labeled gluten-free, I'd have to avoid all oats and oat-containing foods... and frankly that would be the pits. Some of my favorite gluten-free foods contain oats.

-Elizabeth

Open Original Shared Link

Open Original Shared Link

tarnalberry Community Regular
I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

Oat gluten - avenin - is similar enough to wheat, rye, and barley gluten that 90% of celiacs do not react to it. 10% of celiacs do react to it, however. So, it's not exactly a black or white answer that can be had.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.