Attention Sensitive Celiacs

[dilettantesteph]

Thanks for the info - I went ahead and ordered it. Sounds like a great idea since my son seems so much like he is getting gluten somehow and I can't think of the source but have a couple of suspicions for x contm.

That happened to me with my son. There were two things that I suspected. I tested them both with twice the sample size. One was pizza and one was corn chips. The pizza I only tested the crust. Both tested negative, at twice the sample size that means less than 5 ppm. Then I looked at the pizza one again really carefully with a fluorescent light and magnification and I saw a tiny line. Probably about 2.5 ppm and he only had one small piece of pizza. That was enough to make him miss school for two days and feel lousy for a week. The pizza was from a company that tests to 5 ppm. With food like that you can't do more than twice the sample size because there isn't enough liquid to remove for the test. The test has it's limitations. I hope you can find what it is.

[dilettantesteph]

Well. I would like to ask this question to those that post, that are not sensitive. (by no means do I mean ALL posters.....Just seems to be a few on here).

Why take such offense with those of us that are very sensitive? I really would like to know the real reason. All the best, Mike

I think that there is a fear that we are like the canary in the coal mine. Or are they the ostrich with it's head in the sand? Is the food that they are eating really safe? They want to feel that it is and that we are crazy. The test that shows the presence of gluten in the food that they eat must be wrong. You must be a company plant to make money off sick people.

All I know is that when my son or I get sick, I test. I find the food that has gluten in it and stop eating it. We get better. That is enough for me.

[Lisa]

I think that there is a fear that we are like the canary in the coal mine. Or are they the ostrich with it's head in the sand? Is the food that they are eating really safe? They want to feel that it is and that we are crazy. The test that shows the presence of gluten in the food that they eat must be wrong. You must be a company plant to make money off sick people.

All I know is that when my son or I get sick, I test. I find the food that has gluten in it and stop eating it. We get better. That is enough for me.

I have tremendous concern for the people who frequent this site, that companies take advance of marketing their products to frustrated people sick and tired of being sick and tired.

The reliability of this product has been in question and it is outrageously expensive. I also have concerns for the new members here seeking primary information, may feel that ALL food they consume should be tested with this product, sensitive or not.

I do tend to be a bit overprotective, toward the people of this forum and I apologize for that. It has been indicated that it's none of my business what people choose to do. No, it's not my business, but a new member to this site should receive both sides of a discussion on a public forum, to make an informed decision.

If it works for you, GREAT!

[dilettantesteph]

I have tremendous concern for the people who frequent this site, that companies take advance of marketing their products to frustrated people sick and tired of being sick and tired.

The reliability of this product has been in question and it is outrageously expensive. I also have concerns for the new members here seeking primary information, may feel that ALL food they consume should be tested with this product, sensitive or not.

I do tend to be a bit overprotective, toward the people of this forum and I apologize for that. It has been indicated that it's none of my business what people choose to do. No, it's not my business, but a new member to this site should receive both sides of a discussion on a public forum, to make an informed decision.

If it works for you, GREAT!

I appreciate your concern for people on this site, especially new celiacs. For some celiacs, the 20 ppm limit on gluten free foods is not enough. We need our foods to be more free of gluten than that. This has been stated by my GI doc. Reading labels isn't enough for people like us. We need exclusive facilities, and sometimes we need to test things for ourselves, and know to what extent facilities are testing. I agree that hearing about all this super sensitive stuff from the beginning when it might not be necessary can be mind boggling. Later, when it is established that super sensitivity is a problem, you need all the information that you can get. Personally, I felt like you were trying to prevent me from getting that information some months ago. I intentionally addressed this post to sensitive celiacs so as not to confuse newbies. I appreciate your apology.

[snowgirl]

I appreciate your concern for people on this site, especially new celiacs. For some celiacs, the 20 ppm limit on gluten free foods is not enough. We need our foods to be more free of gluten than that. This has been stated by my GI doc. Reading labels isn't enough for people like us. We need exclusive facilities, and sometimes we need to test things for ourselves, and know to what extent facilities are testing. I agree that hearing about all this super sensitive stuff from the beginning when it might not be necessary can be mind boggling. Later, when it is established that super sensitivity is a problem, you need all the information that you can get. Personally, I felt like you were trying to prevent me from getting that information some months ago. I intentionally addressed this post to sensitive celiacs so as not to confuse newbies. I appreciate your apology.

For me its a great help hearing from people who are super sensitive. My son has been gluten-free for over a year now, but has begun to have issues exactly like before going gluten-free - I am searching very hard to see if there is a x contam source since I think he may be super sensitive (he has a severe milk and soy allergy and reacts to trace amts of those), so having a home test is a huge help. It may turn out that one of his other allergies is the problem, but I want all the information out there to help me find the answer. So for me , I want to thank you for starting this thread.

[Mike M]

I have tremendous concern for the people who frequent this site, that companies take advance of marketing their products to frustrated people sick and tired of being sick and tired.

The reliability of this product has been in question and it is outrageously expensive. I also have concerns for the new members here seeking primary information, may feel that ALL food they consume should be tested with this product, sensitive or not.

I do tend to be a bit overprotective, toward the people of this forum and I apologize for that. It has been indicated that it's none of my business what people choose to do. No, it's not my business, but a new member to this site should receive both sides of a discussion on a public forum, to make an informed decision.

If it works for you, GREAT!

Thank you Momma Goose. all the best ( And I mean that sincerely), Mike