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Any Celiac(s) From Canada


Gerri

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ilindsay Newbie

Yes, I am from Ontario - Whitefish (near Sudbury). Moved here from Toronto about 8 years ago. where r the rest of u?


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  • Replies 133
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lorraineh Newbie

I'm in Vancouver and new to the gluten-free life, but I feel so much better off the Gluten.

  • 1 month later...
Jodster72 Rookie

Hello there... Niagara Falls, Ontario here!!!

Jody

  • 3 weeks later...
Toni25 Newbie

Hello fellow Canadians!

My name is Toni and I am from the Fraser Valley BC, 25 years old.

I am new to this website, and new to celiac also. Just love this site- so much helpful info, I really feel the sense of community on here.

Its nice to not feel alone in this battle. :)

  • 1 month later...
Dennis Erickson Newbie

Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

love2travel Mentor

Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

Hi Dennis. Thanks for sharing your story. I too wonder how many have died with celiac-related cancers and other illnesses because they were not tested. It would likely be startling.

I was diagnosed 1.5 years ago and do all my own baking - always have, always will. Dining out and international travel (airports, delays...) are frustrating and challenging at times. We must drive three hours to eat out safely. Thank goodness I adore cooking! :D

Welcome here! :)

  • 3 months later...
smalltown-t Newbie

Hello!  I'm from Stirling, Ontario.


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  • 3 weeks later...
gen1975 Newbie

i am from ottawa canada. I was just diagnosed this morning with celiac disease and am at a loss. This diet seems so complicated!

Life-Of-A-Gluten-Free-Wife Newbie

From Winnipeg, MB here! Very interesting to see others who are also from winnipeg!

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    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
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