Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing Tomorrow, Help!


sam8veggies

Recommended Posts

sam8veggies Newbie

Hello!

I know this question has been asked before, but I wanted to ask with my specific circumstances. I am 21 years old, I have had syptoms for about 2 years, got the IBS diagnosis, which we know, helps no one. I tolerated my symptoms for this long without thinking it could be celiac, since I thought symptoms had to be more severe than mine. (My aunt -not blood related-has it, and I see how she gets, I just didn't realize we were going through the same thing)

Anyway, it all clicked when I saw that eczema was a side effect of celiac, and I had developed that out of nowhere last winter. Then, last month I skipped my period, and after determining I was not pregnant, I saw on celiaccentral.org that one sign could be a missed period. So since then , about 3 weeks ago I have been almost entirely gluten free, (I didn't notice barley malt was lurking in my vitamins for about a week.) I am going for my blood test tomorrow morning (march 2nd). If I eat gluten today, and maybe a handful of kashi cereal about a half hour before the appt tomorrow, do you think that is enough for the antibodies to start freaking out and show up on a blood test? I really want it to come back positive so I finally know what is wrong, and also because I have an appt with a gastroenterologist on the 13th and it would be nice if he didn't have to perform an endoscopy, since the whole idea of a tube snaking down my throat into my intestines makes me pretty squeamish...

Thanks in advance to anyone who reads this and can help me out!

Samantha


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor
. . .

So since then , about 3 weeks ago I have been almost entirely gluten free, (I didn't notice barley malt was lurking in my vitamins for about a week.) I am going for my blood test tomorrow morning (march 2nd). If I eat gluten today, and maybe a handful of kashi cereal about a half hour before the appt tomorrow, do you think that is enough for the antibodies to start freaking out and show up on a blood test?

Hi Samantha,

I don't think we can cram for the blood test. ;)

I've read of Drs saying everything from a few weeks to several months of daily gluten. I might guess that w/ 2yrs of symptoms, your couple wks gluten-free might not be long enough for the antibodies to be gone.

BTW I had an endoscopy last month & it was a breeze. And the doc can check for other issues besides celiac.

sam8veggies Newbie
Hi Samantha,

I don't think we can cram for the blood test. ;)

I've read of Drs saying everything from a few weeks to several months of daily gluten. I might guess that w/ 2yrs of symptoms, your couple wks gluten-free might not be long enough for the antibodies to be gone.

BTW I had an endoscopy last month & it was a breeze. And the doc can check for other issues besides celiac.

Haha, "cram for the test." Well put.

But, that is what I did. And it was strange, I only felt bloated the night before after having a few peices of bread during the day, but had the whole mess of effects yesterday after the test. Not sure what to think of that. I should be getting my results later today, but they are taking a while because the doctor is running thyroid and anemia stuff as well. Thank you for answering me and reassuring me about the endoscopy.

Samantha

sam8veggies Newbie
Haha, "cram for the test." Well put.

But, that is what I did. And it was strange, I only felt bloated the night before after having a few peices of bread during the day, but had the whole mess of effects yesterday after the test. Not sure what to think of that. I should be getting my results later today, but they are taking a while because the doctor is running thyroid and anemia stuff as well. Thank you for answering me and reassuring me about the endoscopy.

Samantha

OH --- and one more quick question to anyone out there: will me being gluten free for a few weeks effect the accuracy of my endoscopy? I doubt the villi would have had time to heal by then, but I just thought I would get any opinions I could.

happygirl Collaborator

Yes, it will most likely affect it. All the Celiac organizations say do NOT go gluten free until testing is completed for this reason.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.