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Just Getting Started On This Road

KarenFe

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KarenFe Contributor
KarenFe
Posted

I had a blood test done two weeks ago and last Thursday called in for my lab results. I talked to a nurse (I believe) and she rattled off a bunch of information and I tried to record some of what she was saying.

First off, she said I was anemic. My number was 9.6 which was 2.5 points low. She said I needed to take a multi vitamin.

Other letters and numbers she rattled off were:

TG ABIGG........

IgG and IgA, normal is 10 (high) and better would be 7. Mine was 38.

Again IgG and IgA - active. Normal is below 5 and mine was 92.

I'm fairly sure I did not write this down correctly (the numbers are correct) because it was like writing down advanced math equations or Latin phrases. I just wrote.

If you can make sense of this, I'd love to know what this means. I have an appointment with a GI on the 19th of this month. I am in the military system so getting answers is difficult and we just have to go with the flow. I will just wait to see what happens at this appointment.

Thanks so much!

Karen

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happygirl Collaborator
happygirl
Posted

It means you are producing antibodies to gluten...its a little confusing based on the reports. Your GI will be able to go over the results with you in more detail. Anemia is common among people with Celiac.

Do not go gluten free until after your appointment and you have completed all testing. Your doctor will probably want to do a biopsy to confirm.

KarenFe Contributor
KarenFe
Posted
  • Author

Thanks for the reply. Do these numbers reveal *how* much of a reaction I have? Do they reveal the severity or mildness of the problem

On a different note, why can't I see this topic in the forum. When I posted it, it posted but I can't see it in the forum. I only knew there was an answer because it showed as the most current topic on the main forum: Celiac Disease and Gluten-Free Forum. Odd.

happygirl Collaborator
happygirl
Posted

You can always click on your own name to find your own posts and topics.

Or, you can click on the forum (Pre-Diagnosis) and look for it. The threads will be in order of last reply, once the original (first) post is pinned (pinned = reviewed by moderator, and pinned. Prevents spam, etc).

Or, if there are new responses "View new topics"

----------------------------------

Its hard to tell which tests were run by what you wrote and what the scores are.

None of the tests really can tell *how* much of a reaction you have. A higher score does not necessarily equate with more symptoms, or more damage.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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