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Stl Celiac...question


Allysmommy

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Allysmommy Newbie

Hey there!

I had read a few days ago about an event in STL in May 09. But darned if I can't find the information now on the boards :D I think it was a walk/run but maybe it was just a Celiac Festival. Either way, could someone email me and let me know if this is true. My daughter and myself are newly diagnosed and I would love the opertunity to get to know others who have celiac disease. If it is a walk/run...how would I go about getting a team together for it? I believe it was in Tillas (sp) Park.

Thanks!!

MacKenzie Cutting

cuttingz3@yahoo.com


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I hate gluten Apprentice

Hi My name is sara and my son and I are in gluten free and in the same stl area as you. I will try to find out all the info and let you know. Please email me if you find out anything and I will do the same. S

I hate gluten Apprentice

Here is a list of different websites you might like to get you started.

Open Original Shared Link This I thought for sure would have a list of the walk you were talking about, but did not.

there is also a bakery in chesterfeild that offers taste testing on saturdays, they sell pizz dough, pizzas, breads, muffins, brownies, cakes and cupcakes. Pm me if you want that info.

I dont know abouts where in stl you live but at trader joes on manchester there are 2 gluten free employees that went through the entire store with us and told us what was good and not. They even let my son taste test 3 things. He is only 5. I have to admit them doing that saved us money on experimenting with food.

Pm or email me anytime. Sara mevans_stl@yahoo.com

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    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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