Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anniversary Reflections


gfwb

Recommended Posts

gfwb Newbie

This coming Wednesday marks the 2nd anniversary of my diagnosis. At that time, I was suffering with severe anemia, osteomalacia, migraines, bloating, the big D, and--most devastating to a woman--my hair was falling out. Now, when I read the entries of the newbies and hear the desperate tone in their comments, it all comes back to me how physically weak and emotionally drained I was that night when my doctor called me at home and gave me the news that would change my life forever.

I was thinking about my 2-year journey this weekend when I was hauling a 40-pound bag of dog food into my car. Two years ago, I couldn't make it through the entire grocery store. About halfway through shopping, I would be so weak, I would go out and sit in the car and my DH would finish the shopping, calling me on my cell phone to confirm what was on the day's list. Now, I do it all myself--even carrying the heavy stuff.

So, I hope this message reaches someone out there who just got that call from their doctor. Think of your diagnosis as a giant "do over". Like when you're a kid and you flub-up--you get a do-over. You feel like hell and then someone says, "Hey, we're going to change all the rules from your old crummy life, and you get a do over with a new healthy life." It will be hard for a while--and you have to learn all this when you feel your absolute worst-- but it is worth it.

I'm loving my new do-over life and am grateful for all the wonderful people I've met because of my diagnosis and all the insight I've gained reading everyone's comments.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cat3883 Explorer

Happy Anniversary. I was diagnosed on October 15, 2008. I consider that date my "new birthday". I felt really bad for about 12 years. Now within 4 months I feel 20 years younger. My energy level is incredible. I feel blessed that the condition I have been given can be controlled by diet. Thank you for your positive post.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748

    Chloelouise04
    Newest Member
    Chloelouise04
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.