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I Just Got My Results Back From The Biopsy...


Jamie

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Jamie Contributor

I tested positive for celiac... I've been researching online and every site says that going gluten free will cause weight gain, constipation, choloestrial levels to rise and vitimin deficiences.... is this true?

I eat very healthy.. natural and fresh foods... I am a personal trainer and I excercise vigerously 6 days a week.... am I going to gain weight anyway? I did not lose weight from being celiac... infact I did not have any of the classic symptoms... only constipation, bloating and stomach cramps here and there. So if I gain... I wont be putting on weight to a gaunt and stickly body... I am just the average weight I have always been. I just find it hard to believe that just by cutting out wheat products all this can happen. It makes it seem almost as if I'll be worse off than eating gluten.


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sbj Rookie
I tested positive for celiac... I've been researching online and every site says that going gluten free will cause weight gain, constipation, choloestrial levels to rise and vitimin deficiences.... is this true?

I don't think any of that is necessarily true - some of it is true but it's all relative to your personal situation.

For instance, some people gain weight because their intestines are finally functioning normally. This might not be the case for you. Some people start to gain weight because they begin to eat more corn and potatoes and other starches in place of wheat flour that are higher in sugars.

There really is no need to be vitamin deficient due to a gluten free diet that I can think of. You may have to work a bit harder to get your whole grains . . . ? You can always take a supplement. People tend to be vitamin deficient because of untreated celiac disease, not after addressing it with a gluten-free diet.

Not sure why a gluten free diet would cause constipation? Perhaps some get their fiber from wheat products only? If that was the case with you, there are plenty of gluten free fiber sources. Apples, prunes . . .

Not sure why cholesterol would rise, either. Some others might know more. My overall cholesterol is good but I am deficient in HDL. I don't think a gluten free diet has much to do with this - probably the smoking I used to do . . .

Takala Enthusiast

Care to share just where you have been "researching" these erroneous conclusions about going gluten free online ? <_<

mushroom Proficient
I've been researching online and every site says that going gluten free will cause weight gain, constipation, choloestrial levels to rise and vitimin deficiences.... is this true?

I lost 44 lbs, have been able to cure my vitamin deficiencies (caused by the celiac), have normal BM's instead of diarrhea, and cholesterol levels have remained the same. I think what happens when you start eating gluten free depends on where you start, your own individual metabolism, and too many variables to make any generalization on the subject :P

Watercolor Rookie

The celiac disease causes vitamin deficiencies, not the gluten-free eating.

The people who gain weight are usually those who had lost weight from the celiac.

If you eat high fiber there will be no problem with constipation.

cruelshoes Enthusiast

Many people gain weight after diagnosis. Before some celiacs are diagnosed, they have to eat lots and lots of extra calories just to maintain weight or keep from wasting away. If you think about it, when malabsorption happens, much of the nutrition from food just runs right through us. Pre-DX, I had to eat about double the recommended number of calories for someone of my height/weight just to keep weight on. But when I went completely gluten-free and started actually absorbing the food I was eating, to became very easy (too easy!) to gain weight. I had to relearn what was a normal portion size and stop snacking throughout the day. This meant reducing the number of calories I was consuming.

Cholesterol can rise for the same reason. Now that one is absorbing the fats and cholesterol from food, it can cause cholesterol levels to go up. Dietary changes can help.

Vitamin deficiencies can occur because many gluten-free foods are not enriched, and are lacking in some of the minerals that wheat products have. This can be compensated for by consuming nutrient dense foods and not switchin over to white rice flour and starch substitutes. The same is true for constipation. Many gluten-free replacement foods are lower in fiber than their whole wheat counterparts. But is one is comsuming a whole (gluten-free) diet with adequate fiber, it should be less of an issue.

It is also easy to assume that just because a food is gluten-free it is good for us. I can say that I was quite liberal with the M&M's in the beginning because I knew they were safe for me to eat. :)

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    • NoriTori
      @Scott Adams No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. I don't even have access to the results as it stands. I was just told "everything looks fine, but slight irritation." I don't know if they took a biopsy because I have no access to the results. I don't know how many samples they took (I recently learned they're supposed to take more than one), I don't know what things looked like internally, it was just word of mouth and I didn't know any better to pry and get copies of everything. And I know! I also have chronic Anemia, never truly resolved UNTIL I went gluten free, and low vitamin D (fairly normal in black community), and low creatine (also resolved with gluten free diet). I plan to request a new dermatologist! As well as a referral to Gastro. Food/symptom diary is a great idea though. I have no way of cooking as it stands, so even just the basics wouldn't work for me.
    • trents
      @NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
    • NoriTori
      @trents A gluten intolerance is a real possibility! I never ruled it out, but am keen on finding out the EXACT cause. I'd want testing done again to be sure it's not celiac, or SIBO (which I've considered) or other digestive disorder. Celiac seems the most pertinent considering its implications.
    • sillyac58
      Thanks so much Scott. I would be incredibly grateful to the gluten gods if eliminating oats was the magic cure. In the meantime, it's nice to have moral support! 
    • trents
      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
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