Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac Disease Or Gluten Intolerance?


Remenyke

Recommended Posts

Remenyke Rookie

I did a report on Celiac disease for my health class and I've also check out a book on Celiac Disease by Peter H.R. Green, M.D.

I have several of the symptoms listed on both Mayoclinic and in the book. I, at first, thought that most of it was related to anemia. I have constant unexplained fatigue, frequent headaches that aren't relieved by any form of pain killers (Vicodin doesn't even work on me...how depressing is that?), Pain in my knees that shouldn't be there (I fall a lot, but really...it's not that bad. I'm only eighteen for goodness sake.), itchy red skin rashes on my inner arms. I don't have ecxema or dermatitis, but I do have Keratosis Polaris that leaves the skin on my arms and legs dry and rough. The skin on my hands, face, stomach and shins (not effected by my skin disorder) is also very rough and dry. I don't know if I need to find different lotion, but it's constant. I get bloated after I eat and I'm plagued by embarassing gas.

I recently read (and I don't know if this is true) that Raynauds Disease is autoimmune and my mother and I both suffer from that terribly and I'm also anemic (runs in my family). I have very pale skin that refuses to tan (not that I want it to...cancer's bad, mmk?). I was also diagnosed with depression two years ago.

So, I don't know if I'm just paranoid, but if someone could help me out, it would be super.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

It's possible. Gluten sensitivity in particular can cause a lot of those things. I don't know how effective a celiac blood panel would be, but you could get that done before going gluten free, providing you have insurance. If it is negative, you could get the Enterolab test done, which shows gluten sensitivity or you could simply try a gluten free diet for awhile. It might take awhile before you see relief. Some of my symptoms disappeared almost immediately (IBS, mental fog), others took months to go away (arthritis).

I'd suggest eating a very healthy diet after giving up gluten, I think too many people turn to gluten free junk food.

sbj Rookie

I agree with the previous poster - if you think it might be celiac then get to your doctor and have him/her run the celiac panel. That would be your starting point.

But just a quick thought or two . . . the headaches, dry skin, joint pain, even fatigue could all be due to lack of proper hydration so be sure to drink the correct amount of water each day. If you are taking something for your depression then it might very possibly be contributing to your fatigue - and remember that fatigue itself is a symptom of depression. Diet could also contribute to fatigue and/or gas so take a good look at your daily diet. Gas is a common issue for many people and it is normal and not unhealthy. Have you tried Gas-X or similar products? You might also try eliminating certain foods to see if that makes a difference. Dairy is a big gas producer for many people. The keratosis pilaris is very common so I don't think that it is related to celiac (going gluten free did not help my KP).

Remenyke Rookie
I agree with the previous poster - if you think it might be celiac then get to your doctor and have him/her run the celiac panel. That would be your starting point.

But just a quick thought or two . . . the headaches, dry skin, joint pain, even fatigue could all be due to lack of proper hydration so be sure to drink the correct amount of water each day. If you are taking something for your depression then it might very possibly be contributing to your fatigue - and remember that fatigue itself is a symptom of depression. Diet could also contribute to fatigue and/or gas so take a good look at your daily diet. Gas is a common issue for many people and it is normal and not unhealthy. Have you tried Gas-X or similar products? You might also try eliminating certain foods to see if that makes a difference. Dairy is a big gas producer for many people. The keratosis pilaris is very common so I don't think that it is related to celiac (going gluten free did not help my KP).

I do need to drink more water. But I've been plagued by these headaches for almost seven years now with no relief (arrrgg! I have many House moments 'Remy?' 'Idiot?' 'Drugs?' 'Please?') I've also read the if someone with Celiac or gluten sensitivity eats gluten, it also alters the chemicals in their brains and can cause depression, anxiety, rage and other complications. I'll try to hydrate more and get back to ya'll. :) Thank you!

More symptoms, people.

Short stature: My mom's shorter than I am, but we are really the only short members of our family other than my brother. The rest of my family are incredibly tall, neckbreakingly to look up at.

Inability to consentrate; I'm usually very good with this. I'm very much the 'Hermione Granger' type. I suppose it's called a 'fog'. I dunno.

  • 2 weeks later...
Remenyke Rookie
I do need to drink more water. But I've been plagued by these headaches for almost seven years now with no relief (arrrgg! I have many House moments 'Remy?' 'Idiot?' 'Drugs?' 'Please?') I've also read the if someone with Celiac or gluten sensitivity eats gluten, it also alters the chemicals in their brains and can cause depression, anxiety, rage and other complications. I'll try to hydrate more and get back to ya'll. :) Thank you!

More symptoms, people.

Short stature: My mom's shorter than I am, but we are really the only short members of our family other than my brother. The rest of my family are incredibly tall, neckbreakingly to look up at.

Inability to consentrate; I'm usually very good with this. I'm very much the 'Hermione Granger' type. I suppose it's called a 'fog'. I dunno.

I had a biofeedback test and it said that I'm fully hydrated. There are a lot of imbalances, though, that the machine couldn't give me the reasons for. It detected the imabalances. Arrrggg Should I bother going to the doctor for the tests, or will I be wasting my time?

  • 2 months later...
Crayons574 Contributor

Have you gotten your thyroid and your hormones checked from an endocronologist to make sure everything is on tract?

As for the headaches.... have you tried taking fish oil and magnesium glycinate? These two are very helpful with migraines. Feel better :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.