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egmag29

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egmag29 Newbie

Hi I just wanted to say hi and to say how glad I am to have found this forum. I was diagnosed with Celiac May 04 and have been trying to make my way through the gluten "mine Field" alone. I am getting very frustrated with feeling like a bloated whale 95% of the time with terrible stomach aches. I have so many questions about what might contain Gluten. After reading some of the forum I have realised that tooth paste may contain gluten, but what else...... I have tried so hard to avoid it even my husband eats a gluten free diet!!!! (to a certain extent) Does Chocolate contain gluten? Help please!!!

Thankyou. :(


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tarnalberry Community Regular

Welcome. You'll find a lot of help here, and a lot of support. As for eating gluten-free, I find the easiest thing to do is eat simply - though I don't mean blandly, I just mean avoiding processed foods. As for chocolate, there is plenty of gluten-free chocolate (Hershey's will clearly label wheat on their ingredient listings and Tropical Source makes good Gluten-free Casein-free choclate too), so there's no need to deprive yourself there! :-)

KaitiUSA Enthusiast

What toothpaste do you use? Crest and Colgate are gluten free. Also check cosmetics(especially lipstick-I overlooked this at first and it had wheat starch in it) Russell Stover, and Hersheys will not hide it on their labels and will list it if it is in their product. My whole family is supportive as well policy is no gluten in the house unless its prepackaged for my dad to take to work. My mom is on the diet with me because she has a severe wheat allergy but now she reacts to all gluten. My dad is gluten free when he is at home. It is great your husband is on a diet with you thats a sweet thing to do. If you haven't you have to try Amy's gluten-free mac and cheese....I love it I think it tastes really good. :D

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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