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Natural Flavors Dangerous?!


4wildberries

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4wildberries Newbie

Hi there. We (myself, hubby and 2 kids) were all diagnosed in 2005 through a mixture of Prometheus labs and Enterolab with the DNA. These last 4 years have been rough, to say the least, because we have no support groups or anything in our small town and our learning of the gluten free diet has been rocky and frought with constant contamination <_<

My question for anybody today is "Have you found natural flavors to be dangerous?" My kids have been eating some Fruit Island Fruit Leathers, some of which have "natural flavors". Well, a few days into this---they have their typical MAJOR gluten dose symptom of a horrendous bloody nose! I mean SOOO bad---we were almost ready to take our daughter to the ER last night :o Their website claims that the flavors are all gluten-free----but if they are in an wheat grain alcohol base---even thought it is gluten free---I am assuming this could cause such a horrible reaction. Is there anybody else out there who is as incredibly, ridiculously sensitive as we are who can't eat things that other gluten-free Celiac's can?????

I did some research on natural flavors today and found out they are not only horrible, but probably worse than artificial because of the chemicals required to make them.


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cruelshoes Enthusiast

Natural flavors can most certainly be a source of gluten. If it contains wheat, it must be declared by law. The same is not true for barley, rye or oats.

Distilled alcohols and vinegars are rendered gluten-free in their processing, but some people report that they are sensitive to them nonetheless. It may be that your family is like that. It doesn't take long on these discussion boards to learn that there is at least one person out there that reacts to every food ingredient.

Are you asking about Stretch Island products? If so, we have consumed both their fruit leathers and Fruitabu products with no reaction. I would consider my son and I to be very sensitive. Here is what their website says:

Open Original Shared Link

Q: I have a gluten intolerance (celiac disease). Can I eat Stretch Island Original Fruit Leathers and FruitaB
4wildberries Newbie

Yes---the brand is Stretch Island. Yep---I read their website today. But what I got from it is that the flavors are more than likely in an alcohol base---gluten free as it may be, we still react :( Fortunately, not all of the flavors have natural flavors----it seems the apple and cherry were the reactive ones for my kids.

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    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
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      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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