Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Natural Flavors Dangerous?!

4wildberries

Recommended Posts

4wildberries Newbie
4wildberries
Posted

Hi there. We (myself, hubby and 2 kids) were all diagnosed in 2005 through a mixture of Prometheus labs and Enterolab with the DNA. These last 4 years have been rough, to say the least, because we have no support groups or anything in our small town and our learning of the gluten free diet has been rocky and frought with constant contamination <_<

My question for anybody today is "Have you found natural flavors to be dangerous?" My kids have been eating some Fruit Island Fruit Leathers, some of which have "natural flavors". Well, a few days into this---they have their typical MAJOR gluten dose symptom of a horrendous bloody nose! I mean SOOO bad---we were almost ready to take our daughter to the ER last night :o Their website claims that the flavors are all gluten-free----but if they are in an wheat grain alcohol base---even thought it is gluten free---I am assuming this could cause such a horrible reaction. Is there anybody else out there who is as incredibly, ridiculously sensitive as we are who can't eat things that other gluten-free Celiac's can?????

I did some research on natural flavors today and found out they are not only horrible, but probably worse than artificial because of the chemicals required to make them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cruelshoes Enthusiast
cruelshoes
Posted

Natural flavors can most certainly be a source of gluten. If it contains wheat, it must be declared by law. The same is not true for barley, rye or oats.

Distilled alcohols and vinegars are rendered gluten-free in their processing, but some people report that they are sensitive to them nonetheless. It may be that your family is like that. It doesn't take long on these discussion boards to learn that there is at least one person out there that reacts to every food ingredient.

Are you asking about Stretch Island products? If so, we have consumed both their fruit leathers and Fruitabu products with no reaction. I would consider my son and I to be very sensitive. Here is what their website says:

Open Original Shared Link

Q: I have a gluten intolerance (celiac disease). Can I eat Stretch Island Original Fruit Leathers and FruitaB
4wildberries Newbie
4wildberries
Posted
  • Author

Yes---the brand is Stretch Island. Yep---I read their website today. But what I got from it is that the flavors are more than likely in an alcohol base---gluten free as it may be, we still react :( Fortunately, not all of the flavors have natural flavors----it seems the apple and cherry were the reactive ones for my kids.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Frustrated

      I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...
    2. knitty kitty
      - knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      This Roller Coaster Ride Needs to Stop

      @Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Frustrated

      Thankyou I will be seeing my new primary this coming Monday and will ask.I did ask about some other blood test to look for that I saw on this website.I pushed the second ANA panel two months ago thinking it would show but found out it doesn't.I don't have lupus which seems what the ANA panel seems to only look for.I have come to the conclusion that doctors...
    4. Scott Adams
      - Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Newly Diagnosed

      It’s completely understandable to feel blindsided by a celiac disease diagnosis, especially when you’ve never experienced any noticeable symptoms. Many people assume that celiac disease always comes with obvious digestive distress, but in reality, some people—like you—are asymptomatic, or what’s sometimes called “silent celiac.” Even without symptoms, the...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Frustrated

      Welcome to the forum, @Jmartes71, Wow! 31 years! That's great! You can get a DNA test to show genes specifically for Celiac. Your genes don't change whether you eat gluten or not. Have you been checked for nutritional deficiencies? The gluten free diet can be low in essential nutrients. You may have become a bit deficient after such...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,461
    • Most Online (within 30 mins)
      7,748
    Joli Rodriguez
    Newest Member
    Joli Rodriguez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Frustrated

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up.   I know what a struggle it is.  You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...  
    • knitty kitty
      This Roller Coaster Ride Needs to Stop

      By knitty kitty · Posted

      @Ginger38, I'm with you!   I could not take Metformin.  I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting.  Just horrible.   Metformin is known to block thiamine absorption.  Talk to your doctor about thiamine deficiency.  It's called Gastrointestinal Beriberi.  My doctor didn't recognize thiamine deficiency outside of alcoholism.  So I took over the counter Thiamine in the form Tetrahydrofurfuryl Disulfide and felt health improvement within an hour.  Magical!   I followed the Autoimmune Protocol diet to get my stomach calmed down and control my blood glucose levels without medication. Being diabetic, we lose more thiamine through our kidneys, and the Metformin on top of it and malabsorption from Celiac.  Talk to your doctor soon!
    • Jmartes71
      Frustrated

      By Jmartes71 · Posted

      Thankyou I will be seeing my new primary this coming Monday and will ask.I did ask about some other blood test to look for that I saw on this website.I pushed the second ANA panel two months ago thinking it would show but found out it doesn't.I don't have lupus which seems what the ANA panel seems to only look for.I have come to the conclusion that doctors are like hair people meaning all hair places know how to cut hair and style but not all know how to grow hair.I was given tramadel for nearly 20 years to push through. I literally can't no more and stopped taking tramadel since I was swelling slowly in the belly.I will diffently show new primary this website and hopefully he will help.Its so hard because im falling apart with my eye, skin and read every label and stay away from what Im not supposed to.I had SIBO test done and it died on me and didn't complete all 8 breathes just the 5.I spoke to np and was finally validated by word of mouth.Cone to find out I have to repeat again.I went to a reputable hospital to be let down.I have to redo breath test but want to do at hospital instead of at home so no issues.Its not pleasant drinking that glucose stuff and not getting a direct answer. I live in Northern Cali.What recommended gi would know about celiac  disease, really know because I thought I found one but didn't. I don't want to digest any wheat, dairy, peanuts, rye, barely, eggs,garlic, walnuts because I get sick.When i showed the reputable hospital my past food allergies i was told that test is old.My thoughts were i was made in 1971 and its still avtive with diagestive issues. 
    • Scott Adams
      Newly Diagnosed

      By Scott Adams · Posted

      It’s completely understandable to feel blindsided by a celiac disease diagnosis, especially when you’ve never experienced any noticeable symptoms. Many people assume that celiac disease always comes with obvious digestive distress, but in reality, some people—like you—are asymptomatic, or what’s sometimes called “silent celiac.” Even without symptoms, the disease can still cause internal damage to your small intestine and increase your risk for serious complications like osteoporosis, infertility, certain cancers, and neurological issues, including ataxia. That’s why treatment—a strict lifelong gluten-free diet—is recommended for all individuals diagnosed with celiac disease, not just those who feel sick. It’s surprising that your PCP advised you to continue eating gluten, as this contradicts current clinical guidelines. You may want to seek a second opinion from a gastroenterologist or a dietitian who specializes in celiac disease. Even without symptoms, going gluten-free is the best way to protect your long-term health and prevent complications. Your first degree relatives should also be screened for celiac disease. You’re definitely not alone—many in the celiac community have been in your shoes and can offer support as you begin this unexpected journey.  
    • knitty kitty
      Frustrated

      By knitty kitty · Posted

      Welcome to the forum, @Jmartes71, Wow!  31 years!  That's great! You can get a DNA test to show genes specifically for Celiac.  Your genes don't change whether you eat gluten or not.   Have you been checked for nutritional deficiencies?  The gluten free diet can be low in essential nutrients.  You may have become a bit deficient after such a long time.  Deficiencies in certain vitamins and minerals can lead to many health problems. Start keeping a food journal.  Other food sensitivities could have developed.  Journaling can help connect symptoms with specific foods.  Vitamin D can help calm the immune system so you don't react to everything. When I was deficient, I had peripheral neuropathy, headaches, migraines, joint aches.  I was seriously deficient in many other vitamins and minerals.  Our bodies need the eight essential B vitamins to function properly.  Thiamine deficiency can appear first because thiamine can become depleted within eighteen days. Infections can deplete thiamine stores. Covid Longhaulers are frequently thiamine deficient.  Ask for an Erythrocyte Transketolace Activity test if available.  Blood tests aren't really accurate measures of Thiamine, but if low, you've probably been deficient for a good while. Thiamine and Vitamin D may help with menopause.  I also take Oil of Evening Primrose which helps immensely.   I was deficient in Cobalamine B12, thiamine and the other B vitamins.  B Complex vitamins are important for nerve health.  I had pain up my legs from neuropathy.   A combination of Thiamine, Pyridoxine B 6, and Cobalamine B12 acts as an  analgesic.   Thiamine deficiency can take the form of Gastrointestinal Beriberi, causing almost constant diarrhea.  I bought a chamber pot and kept it handy.  I couldn't make it to the bathroom. Thiamine deficiency can affect appetite.  One can lose their appetite or become ravenous or swing between the two extremes.  Thiamine deficiency can also cause weight loss and muscle wasting.  I lost weight then muscle within days.   Yes, I understand.  I lived through it despite my doctors not recognizing thiamine deficiency outside of alcoholism because it presents differently.  I was so desperate,  I took over the counter Thiamine in the form Thiamine Tetrahydrofurfuryl Disulfide (TTFD) and felt improvement within an hour!  It was like magic!  I also took the other essential vitamins and minerals.  Talk to a dietician. Talk to your doctor about testing for thiamine deficiency.  Definitely.   Keep us posted on your progress!  Best wishes!
×
×
  • Create New...