Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Villi

mario

Recommended Posts

mario Explorer
mario
Posted

I have been on the diet for about 10 days now. How long will it take for my villi to heal up and, once healed can it get flat again if an accident happens...?? My friend has been celiac for 10 years now and, he's gotten less sensitive...he really respects his diet..

mario

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest PastorDave
Guest PastorDave
Posted

Hi Mario;

I'm not an expert, but I've heard thta it takes a while for the villi to heal. It depends on the amount of damage. I think some people have noticed a difference in a few weeks, others in three or four months. If you hvae an accident and eat some gluten, there will be damage. It takes less than a milligram of gluten to do damage, so of course we have to be very careful.

I haven't been gluten free for long either, and I didn't have too much damage to my villi. I have been able to learn alot about celiac through my Mom (who has it) and my wife (who has a RN and her bachelor's degree in nursing). It is certainly difficult to understand, but it is possible to get it under control.

mario Explorer
mario
Posted
  • Author

it is possible to get it under control..but, my question was my gastroenterologist found my villi to be almost flat and, inflammed, he made a scetch of it and, told me that it was going to go back up in a couple months..he made a finger like scetch. Ok, what I'm trying to understand is, can just one small miligram of gluten flatten the villi all over again..??? :(

JsBaby-G Newbie
JsBaby-G
Posted

Mario,

To begin with your villi most likely have not totally healed yet therefore are still somewhat flat. It does in fact take a couple of months for the villi to restore it's natural and healthy shape. I too, had massive damage to my villi and it took 3 months or more to get them back in shape. Yes the most minute amount of gluten can harm the villi. Gluten is poision to our systems. Think of it this way, if you give a plant a little bit of a chemical the leaves might wilt, but it won't die. The more chemical you give the plant the bigger impact it will have the plant physically but on a cellular level the damage is done. They won't totally flattened out again but there will be damage nonetheless. I've learned this the hard way. I've been on the diet for 8 years and I still make mistakes. It takes time, but you have to be very careful!! Hope that helps! :P

mario Explorer
mario
Posted
  • Author

thanks JsBaby G :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,856
    • Most Online (within 30 mins)
      7,748
    Skindy
    Newest Member
    Skindy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Refractory Celiac disease - what to do

      By Scott Adams · Posted

      Your doctor is most likely correct here, and if you had high tTg-IGA and villous atrophy you likely have celiac disease and need to be gluten-free. If regular small amounts of gluten get in your diet, it will prevent recovery. Eating out in restaurants is the primary source of such contamination.
    • Scott Adams
      Supplements for those Diagnosed with Celiac Disease

      By Scott Adams · Posted

      Mostly trial and error and noticing the effects of the supplements over time. It's important to look at the bottom of my original post in this thread to see nutrients that can be toxic in higher does, especially over long periods of time.
    • Scott Adams
      Refractory Celiac disease - what to do

      By Scott Adams · Posted

      As @trents mentioned, removing gluten if you have celiac disease would be key to villi recovery, and if you still are having issues trying to identify other triggers would be the next step, even though the additional intolerances will not likely contribute to villi recovery. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:      
    • trents
      Refractory Celiac disease - what to do

      By trents · Posted

      Well, it certainly seems reasonable to get checked for Crohn's since you have a family member with it and SIBO. You might also consider talking to your physician about a trial on an immunosuppressant, like prednisone, to see if numbers go down and symptoms subside. Sometimes, just interrupting the inflammatory cycle can effect a reset and put you on the road to health.
    • ehb
      Supplements for those Diagnosed with Celiac Disease

      By ehb · Posted

      I am wondering how you developed this supplementation regimen? Was it just through trial and error? Did you base this trial and error on blood tests or symptom improvement? It cost me $300 for the blood tests, so I would prefer not to do those regularly
×
×
  • Create New...