Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Tried Enterolab?


prayin4achange

Recommended Posts

prayin4achange Newbie

Hey everyone. I have been struggling with problems all over the place for about 7.5 years. In the past year my husband and I spent $4000 even with insurance on medical stuff!! I've been searching all through this website and finding out wonderful information. Thanks so much to everyone sharing your stories to help us newbies! :) I read something in a post from 2004 called the enterolab. I looked it up and it's quite expensive, which Im sure any tests is. Has anyone tried this? Is is accurate and worth it? If it really works I dont mind paying the money. I just dont want to be scammed or waste the money we dont have.. im sure you all understand haha..

The two tests I saw that seemed helpful to diagnois celiac are 1)Screening test for gluten sensitivity (Fecal antigliadin IgA antibody*) and 2) HLA-DQ testing from swab of inside of mouth. Would I need to have both tests or is one more accurate? Also, would you guys trust this or suggest I just go to a doctor here and ask for help. I live in Mississippi and I dont think they take it very seriously here or know much about it. Thank you.

Jenn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mike M Rookie
Hey everyone. I have been struggling with problems all over the place for about 7.5 years. In the past year my husband and I spent $4000 even with insurance on medical stuff!! I've been searching all through this website and finding out wonderful information. Thanks so much to everyone sharing your stories to help us newbies! :) I read something in a post from 2004 called the enterolab. I looked it up and it's quite expensive, which Im sure any tests is. Has anyone tried this? Is is accurate and worth it? If it really works I dont mind paying the money. I just dont want to be scammed or waste the money we dont have.. im sure you all understand haha..

The two tests I saw that seemed helpful to diagnois celiac are 1)Screening test for gluten sensitivity (Fecal antigliadin IgA antibody*) and 2) HLA-DQ testing from swab of inside of mouth. Would I need to have both tests or is one more accurate? Also, would you guys trust this or suggest I just go to a doctor here and ask for help. I live in Mississippi and I dont think they take it very seriously here or know much about it. Thank you.

Jenn

Hello, I think Enterolab is another valid choice that can be used to diagnose gluten intolerance. You don't have to go for all of the testing all at once. They will keep the stool sample for up to six months. Example, you could send the sample there and just have the Fecal antigliadin IgA antibody test done. If it is positive, you may want to have other tests done that they perform, like for other food intolerance's (egg, milk,soy ect ect). You can pay as you go. If your test is positive for a gluten intolerance, I would highly suggest following up with a good GI Doctor that understands gluten issues. Keep in mind, they (Enterolab) will not give you a Celiac diagnosis. It will really help you long term to know for sure if you have an issue or not. There can be value in seeing it in "black and white" (writing). There can be times when it is natural to have doubts as you navigate a gluten free lifestyle. Hope this helps, Mike

Edit: I forgot to mention I also used them (sorry). Enterolab was my first step. I called a Doctor that I knew and told him of the positive results and he sent me to his personal GI Doc who took it from there. The positive results from Enterolab was truly a life changing moment for me. It was the answer/reason for my life long ill health that no other doctors could figure out.

Lisa Mentor

Open Original Shared Link

You might find this link informative. It's more current than the 2004 post you mentioned. ;)

Here is some information on testing: (the serologic blood work is faily inexpensive)

Open Original Shared Link

Welcome Jenn. I'm sorry but I don't have any experience with Enterolabs personally.

Good luck!

Nancym Enthusiast

I used them. I had decided I was gluten sensitive from a dietary trial but decided to have them test me anyway to confirm. I did turn out to be on their test too. I had the full panel done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748

    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.