Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Question


skipper30

Recommended Posts

skipper30 Enthusiast

My oldest child has recently presented with a small group of tiny blister like spots on his knee. The spots are only on one knee and he says they are very itchy. He has scratched then to the point that they have popped and are now scabbed over.

I am wondering if there is a "standard" size that these blisters are? Does it vary? Do they have to appear on both sides of the body or can they appear on just one? He has never been tested for Celiac. Our pediatrician is old school and believes that "he would have tummy problems" if he had celiac...

My Celiac child never had this kind of reaction so this is new to me. My #2 was all intestinal problems.

I have looked through so much stuff that I am actually getting more confused.

Thanks in advance...

Dallas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bunzilla Newbie

It sounds alot like my initial symptoms. Although I was 49 when it first appeared. It started on one Knee. Of course at first I had no idea what it was. It later spread to the other usual places. I had no intestinal symptoms that I could associate with it.

Diagnosed through blood test, skin biopsy, and endoscopic biopsy with DH and, of course, celiac.

If celiac already runs in the family I would say there is a very good chance that is what it is. I.M H.O.

good luck.

Tallforagirl Rookie
I had no intestinal symptoms that I could associate with it.

Diagnosed through blood test, skin biopsy, and endoscopic biopsy with DH and, of course, celiac.

If celiac already runs in the family I would say there is a very good chance that is what it is. I.M H.O.

good luck.

If the boy has not already been tested for celiac disease he should be, regardless of symptoms or lack of. As a sibling of a diagnosed celiac he has ten times the risk of the general population of developing it.

DH is usually symetrical (appears on both sides of body in same place), and can be diagnosed by skin biopsy. When you have diagnosis of DH you also have diagnosis of celiac disease, no gut biopsy needed.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748

    S.Craigwell
    Newest Member
    S.Craigwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.