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Possible Other Reason For Gluten Intolerance


jmcbride4291

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jmcbride4291 Contributor

I am posting this because I have seen many where they have been gluten free for a long time, yet have seen little to no recovery. I have first hand experience with this.

I became severely gluten intolerant. I had all the symptoms. My Para thyroid went crazy, constipated, fatigue, skin, tooth loss, hair loss, blurred vision, sleeplessness, and the list goes on. At the same time my wife & children even had symptoms. All varying in severity. I went gluten-free. I could go to the bathroom again, could function a little, and so on. Now the blood tests and endoscopy came up negative. We all know that this is not a 100% anyway. I reglutenated several times, sometimes on a blind, and went down hill.

The rest of my family were also not well. I took the rest of my family off gluten and they too were a little better. It turned out we had a serious mold problem. Mold victims become gluten intolerant. The toxins produced by mold cause our immune system to go wild. Your good flora gets depleted by fungi colonization not to mention that certain hormones and cytokines cause digestion problems. I will discuss in more detail all aspects of mold toxicity (mycotoxicosis) in the future.

If exposed to the levels we were you now become toxically injured. This means now your cell defenses are weakened and the ability to fight toxins, whether chemical or made by nature, are severely compromised. This in turn causes a hypersensitivity to chemicals. Fragrances, inks, gases, or many other elements make the toxically injured sick. All the symptoms that Celiacs have, mirror exactly that of the toxically injured. Keep in mind that severe exposure to chemicals causes the same. It does not need to be mold to cause toxic injury.

Diabetes, seizures, memory loss, hair loss, and all the rest have been scientifically linked to toxins. Even cancer is.

Please keep this in mind, if you are not recovering. Less then 2% of doctors are even trained with this. I have researched this in depth, and have successfully net worked with researchers and doctors to confirm this. If you ever heard of Sick Building Syndrome, this is one of the most common results.

If, people wish, I will post more in depth information in the future.

Ps: Please note the email on my account is not working temporarily. Trying to get it changed.


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JodiC Apprentice

Can mold cause positive blood and biopsies? If so is it treatable? I didn't get ill till we moved into our 100 year old house! Ended up with a nasty fungal respiratory infection (treated with anti fungal). This fungus should never be found in the lungs. They had me pegged with COPD and Intersestial lung disease. All reversed with treatment. Very interesting post. Please keep us informed with any new developments. I believe there is also more to this story.

ginnybean32 Newbie

I am very interested in mold as a possibility for my getting sick. We moved to our new house in 2006 and I have had a problem with mold in my washer and shower. We live in the country now so I guess mold is just more of a problem here. It is very hard to stay on top of it in the spring and fall. Anyway I always had constipation as a child and some stomach issues but not until we moved did I have any intestinal issues. I also started getting sick more often. Since we moved out here I have had pneumonia, thrush, parasites, a mycoplasma infection, strep, H. Pylori, blurry vision (my eye doctor says my eyes and retina are fine) fatigue that is severe at times, now Im having loose stools constantly and now a positive Celiac biopsy. My GI told me to stay away from milk as well as wheat and gluten. My regular doctor is checking a blood test for auto immune disease because I got livedo reticularis and raynauds. He said Celiac people often have RA, Lupus, Scleroderma and other AI disease.

I wonder if an allergy to mold can cause a false postive blood or biopsy test for Celiac. I think I'll go to an allergist and just get tested for everything. Then if I am allergic to mold I dont know how I can get rid of it so it dosnt keep coming back in my house.

  • 4 years later...
missbl Newbie

I was diagnosed with Celiac in 2009.  I have been fighting with Mold issues on and off since 2007.  I would love more information, as my doctor is telling me I am highly allergic to Mold and I can't seem to get better. I need help! 

CeliacInSenegal Rookie

Do you have any links to sources or data on a gluten-mold connection? I'd be interested to learn more.

kareng Grand Master

These 2 posters haven't been on the forum since 2009.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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