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2 Week gluten-free Diet

sunnyskies72

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sunnyskies72 Newbie
sunnyskies72
Posted

Hi all,

I have just started a 2 week gluten-free diet per my doctor. I have LONG struggled with my different symtoms. I have always struggled with a nervous, quesy stomach. Constantly having stomach aches. Difficulties with going to the bathroom, mainly diaheria. (may have IBS). My stomach has always made lots of noise, gurgling and mouning. I have have a lot of gas, although I can't burp. I have thought that it was Acid Refulx and was on Prilosec for 9 months that didn't really help. I just recently decided that enough was enough. There had to be a reason for my stomach problem, not just that this is the way my body is. My doctor recommending seeing if I have Celiac and put me on a gluten-free diet for 2 weeks. Here's way it gets a little tricky. I am also Lactose Intoreant, although I can handle some dairy. I am also allergic to fresh fruit, with I LOVE. I live in a house with 3 other adults and 2 kids. So it's been a bit tricky trying to get meals together. I don't want them to have to suffer with my diet as well.

At first I thought, "Oh this will be easy, just don't eat bead or pasta". But it is a lot tougher than I thought. I'm a huge fast food junkie. I tend to eat out 4-5 times a week. Taco Bell is my favorite. I'm 26 and 108lbs. I've always been thin and lately have been fatigued and have a loss of energy. Since being on the diet I have noticed my stomach has been much quieter. I'm really starting to feel like this may be my problem. And I'm releived to be able to find so many others with the same issues as me.

Does anyone else have the same type of allergies that I do? And if so, what alternatives do I have for fresh fruit?

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ang1e0251 Contributor
ang1e0251
Posted

I'm sure many persons will post for you. I don't have a problem with fruit any longer. After about 8 months gluten free, I was able to eat it again. Can you eat low sugar fruit or is it any fruit? After you are gluten-free for a few months, you may be able to reintroduce dairy and fruit.

sunnyskies72 Newbie
sunnyskies72
Posted
  • Author

I've had reactions to any fruit I've eaten so far, I only developed the allergy a couple years ago. Do you feel worse before you feel better? I've been nauseous for the past 2 days. (started diet 4 days ago)

ang1e0251 Contributor
ang1e0251
Posted

No, I was one that saw quick improvements as time went on. But plenty of people on the forum report feeling worse before better. It seems to be pretty common. Just know that everyone's reaction is different. That's why it is so hard to dx and spot. My dr didn't believe me because I'm overweight and not emaciated.

I wouldn't worry about fruit right now if it bothers you. The thing is to get used to the diet, eat what your body says it wants, and heal. Later you can adjust your diet if you feel you need to. I personally don't think anyone needs to follow the daily requirements when they are sensitive to a food. You're body can't handle it period.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
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      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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