Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity To Gluten


mikehall117

Recommended Posts

mikehall117 Rookie

I have been gluten-free for 14 days now and the transformation has been quite remarkable. However I accidentally consumed Gluten at the weekend while visiting my parents. My father cooked a meal and added Soy Sauce which contains Wheat Extracts and Wheat Dextrose. He was convinced that a small amount wouldn't do me any harm and didn't bother to tell me about it. I then rather stupidly had a very small glass of beer, thinking that I would be ok. Within a few hours I was feeling tired and uncomfortable and it's now 36 hours later I now feel very unwell with bloating, Big D, Migraine, Irritability, muscle aches and fatigue. The strange thing is that I feel much much worse than I would normally do when I was eating Gluten every day! :(

What I would like to know is whether staying gluten-free for two weeks now means that when I eat even the smallest amount of Gluten I am going to feel like this - i.e. considerably worse than when I ate Gluten every day. Could it be that my stomach and intestines have started to heal and so are now far more sensitive?

How sensitive am I going to get? Am I going to have to avoid sharing a toaster and cookware? My doctor didn't tell me any of this and I am confused and upset and would really appreciate any support and advice I can find.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Yes, it is common to have an increased sensitivity once you've been gluten-free for a while. Last I read, there didn't seem to be solid research to explain why. Many suggest that the body is simply more capable of reacting, rather than being overwhelmed.

Yes, you'll need to get a dedicated gluten-free toaster. Many on this board choose to keep separate cookware as well. How much you have to replace depends somewhat on how diligent and careful you are about cleaning them. Scratched pans, wooden utensils, cast iron, or anything with a surface to which gluten can cling is asking for trouble. I'd suggest checking the dish soap you use, and be sure to keep a separate dish sponge. Wash the utensils you use separately, though many say their dishwasher does well enough.

Also, it's a good idea to keep boxed gluten-free things in a separate cabinet/drawer/area, so they don't get contaminated. If someone is using wheat flour, stay out of the kitchen. Make sure everyone in your home understands how important it is to clean up after themselves.

samcarter Contributor

I think what happens is that while we're still eating gluten, the problems are our "normal". I know I thought everybody else had pain when they used the bathroom, or felt incredibly lethargic by 5 pm, and had no motivation to be active.

once I went off gluten, I felt so different! Then when I get glutened, what used to be my "normal" is now obviously not. If that makes sense. The symptoms you get after being glutened are more pronounced partly because you're noticing the difference between being well and being on gluten.

Also, yes, we get more sensitive because our bodies know what it's like to feel good! I think our bodies have a natural defense mechanism against substances that are bad for us individually, and once we clear the system that mechanism can work better.

I would supply your dad with wheat-free, gluten free cooking ingredients (LaChoy soy sauce is gluten free!) next time he wants to make you a meal. And try to impress upon him that yes, small amounts of gluten is STILL gluten. It's not about quantity.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.