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Where Are We Getting Gluttoned From?


songstressc

Contamination from Bins   

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songstressc Apprentice

My husband and i went gluten free end of Nov 08 Dec 1 ish - Today we were back at the doc for our latest test results. Initially my gliadin (SIgA) count was 12 when diagnosed his was 15 BUT TODAY our counts were higher 23 and 27! Shouldn't it being going down down down! We are wondering what we could be eating? I am frustated don't know what we are missing? We try to eat organic as much as the wallet lets us and as healthy as possible. We shop for fresh fruit and veggees regularly, eat soy or coconut yogurt - Eat, beans, lentils, rice etc. more vegetarian vegan than not but we do eat eggs. I buy flours labelled gluten free. Wondering Feels like I start to feel so much better and then wham again!

Some items we are wondering if we are making a mistake eating::::::::::

I have bought Jolly time popcorn this does not say anything about gluten free it says contains egg, soy and milk ingredients NOT wheat so??

To Bin or Not to Bin - Heck I started a Poll for those who only want to give quick feedback. To Grind or Not to Grind?????

We have always bought from bins and even when we were first diagnosed and fatigue was improving for both of us ; spoke to Whole Foods where we shop for certain items and they have shared their process with regards to bins; THEY DO NOT change bins ingredients they move the whole bin if they need it somewhere else ; they do remove bins. They even mark on some bins may contain wheat or do for example the flours, oatmeal etc. They have scoops for particular bins attached Not many say may contain wheat that are not wheat based.

We buy fresh ground peanuts we grind at whole foods on our home baked bread It is accross from any other bins and all products on same side are sealed.

I have bought things from the bins now that I think of it but never from the 'may contain wheat' bins.

What about Jams that don't say gluten free like Trader Joe's or WF fruit preserves lower sugar with fruit pectin -does not say may contain wheat etc. -should be okay then I think????

Anyone buy their Manchego Cheese - It is the only cheese we buy as I have a problem with dairy The cheese is a sheep cheese from Spain and yummy this lactose girl can eat it!

I know blue cheese can have wheat so..

We also buy the Only Egg whiles from Trader Joe's

I am going to contact Whole Foods and ask them again to check on the bins that we have used and the peanuts we grind.

For those out there just joining - I am still new at this and even though I get tired of the immense work etc. I am glad to find out the cause of my childhood illnesses. I read a post and say hey that's me too! I l was always throwing up as a kid/ not growing/ getting sick colds, infections and dental cavaties but the biggest obvious change for me is my nails; they were growing amazingly strong and long; I had to cut them! Now they have been breaking growing; Seems like it takes so long to get over a glutinous experience!

THIS SITE IS AMAZING I really don't know how I'd cope so well without the support of the generous people willing to share a thought or two. Thank you


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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