So Frustrated Waiting! Took 4 Weeks For Blood Results Now Waiting To Book Scope.

[kaiess]

I'm just so frustrated!! I had to wait 4 weeks to get the TTG results for my son and once I finally got them was told they wanted to re-scope. No kidding, with a TTG of +>222.6 (normal being <20). I was told I'd hear back from the OR booking department at Children's Hospital within a week or two. Today is 3 weeks and I have left 2 messages on their phone with no reply! We live 1600km (yes 1600) from Children's hospital and thus will have to book holiday time to go there for the scope. I was told 3 weeks ago they were booking around the end of May/beginning of June. So by the time we get booked it will likely be July.....nearly 5 months since his super high TTG!! Thankfully for us he has no real symptoms so he's not in any pain. We just want to get on with the plan (the DIET).

It's also been 2 weeks since the rest of us have been tested and still no results.

I hate this. And then if I do call back I'll get some rude nurse who's irritated that I'm calling. They obviously don't have sick kids!

Kathy, in Canada, mom to jakob, 9.