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Quite Disheartening....

Canadian Karen

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KaitiUSA Enthusiast
KaitiUSA
Posted

Michael

These are the common tests for celiac:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-TissueTransglutaminase (tTG) IgA -This is tTG

-Total Serum IgA

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Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Okay, here the prescription:

Prednisone 5 mg.

Take 6 tablets at one time once daily for one week.

Next week take 5 tablets for one week.

Next week take 4 tablets for one week.

Next week take 3 tablets for one week.

Next week take 2 tablets for one week.

Next week take 1 tablet for one week.

Then continue with the one budesonide per day after that......

Has anyone else been on this schedule?

Thanks!

Karen

tarnalberry Community Regular
tarnalberry
Posted

I've been on a taper, but not one that long. It was for asthma, and it started, I think, at 40mg, but tapered off after three weeks, I think. What you described looks fairly standard for a heavy treatment of pred. I hope you take to it better than I did! :-)

Merika Contributor
Merika
Posted

Hi,

Wow, that must be really frustrating (((hugs))) If it's not gluten directly in your diet (and believe me, I've missed sources too, or had a product change ingredients...), I think the kids may be a likely culprit.

I can't imagine having four non-gluten-free kids running around the house!!!

My one gluten-free kid - age 3 - is unknown celiac. We have him on a gluten-free diet just to be safe, and will test him when he's older. But ANOTHER reason I have him gluten-free is because I don't want to be preparing non-gluten-free meals. He can eat what I eat. Otherwise, I know I'd be accidentally licking the peanut butter off my fingers (that was touching the bread) and getting wet non-gluten-free kisses, and holding sticky non-gluten-free hands, etc.

I'm sure older kids would rebel against eating gluten-free at home (though it's a thought), but you may want to consider some new rules in your house. Such as - mom doesn't make non-gluten-free foods when she's cooking her own. Kids - Always wash your hands after every meal. No non-gluten-free snacking around the house (have a dedicated snacking area). And so on. You know your family and what would be best.

I think kids of any age can grasp this concept, and be ok with it, and I don't think it's too much to ask of them.

Best of luck with everything,

Merika

Rikki Tikki Explorer
Rikki Tikki
Posted

Karen:

I agree with Laura. I took prednisone for 16 days. It seemed to heal my tummy and gave me a push in the appetite area. I took it just a couple of months ago. I didn't have any long term effects that I could see. Maybe a little more cranky than usual Grrrr :angry:

But that too passed!

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Well, let me tell ya, "cranky" is not the word I would use to describe myself the last few days - more along the lines of miserable :( , angry :angry: , argumentative :angry: , sullen <_< , in other words, I have been just a joy to be around the last few days!!! Very quick to temper, which is usually not me at all..... :unsure: Also, one thing that surprises me, the doctor told me that I would probably be full of energy and wanting to clean my house at midnight, etc. etc..... Well, since I have been taking it, I just can't seem to be able to keep my head on straight or my eyes open -_-. I wake up in the morning and it feels like I have had no sleep at all!!! Has anyone else had this reaction?

I was looking forward to getting some spring cleaning done with this anticipated burst of energy!!! <_<

Karen

Rikki Tikki Explorer
Rikki Tikki
Posted

Karen:

I kept waiting for the burst of energy and never got it! I was dissapointed. He also said I would have this wonderful sense of well-being, almost like I was high, never got that either. I was just so hungry.... :blink: A friend I work with also had to take it, and she was really, really cranky so I suppose it's normal. :angry:

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Rikki Tikki Explorer
Rikki Tikki
Posted

Hi Canadian Karen:

I was just wondering how you are feeling?

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