Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Typical Symptom?


suorkaterna

Recommended Posts

suorkaterna Newbie

Hey there everyone, I'm new here. Here's my story.

About a month ago I was down with the flu. After it was over I felt weird for a couple days and then all hell broke loose. I was in the bathroom every five minutes with diahria, my stomach doing lots of fun things with gas. I thought I was still having the flu. So all i ate...was crackers and gatorade. It didn't go away. Finally a friend suggested I might have Celiac. She has it and has heard me complain about bowel issues before. I didn't think it was possible because it came on so fast. I looked in my Gluten Free for Dummies book and read that Celiac can trigger serious symptoms quickly after an illness(like the flu). So i stopped eating the crackers and all wheat/gluten and I got better. I havn't eaten much wheat since, just a few slip ups here and there with mild reactions. Usually the slip ups are things like Malt Balls, soy sauce in dressing.

But this weekend i did a NO-NO. I'm a cook and I had made a new kind of pancake for my guests but there was nobody there to test it for me...yeah, I tried it...and then, I ate the whole pancake. The rest of the day I felt groggy , had a headache, blurry vision and when i went home I went to bed and slept untill the next day. The next day I felt like my "flu" was back. It's two days now and I'm still in and out of the bathroom and sleeping too much.

Is this a typical reaction to gluten for someone who's been off it for a while? I find it hard to beleive one frick'n pancake has taken me out of comission for three days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Swpocket Rookie

I think for everyone its different. For me, even the slightest trace of gluten, will leave me sick for a week to even two. I recently stopped eating gluten 2 months ago and I'm still sick from some traces of it from a used butter knife...so it is very possible for it to make you sick.

I'm new to this lifestyle so I don't know very much, but I hope it helps

ravenwoodglass Mentor

The first thing you need to do is to get to the doctor for a celiac panel. You need to do this before becoming gluten free. While blood tests are notorious for false negatives it is worth your while to get them. The reactions you speak of do sound like gluten reactions and after testing is done then no matter what the results you can go gluten free and then challenge again if you have doubt.

suorkaterna Newbie

I think it's a little too late to get tested. I refuse to eat gluten, esspecially after this last incident. I know that all the tests require you to be eating it before the test and even then, the tests are not conclusive. Also there's no medication for it so...I might as well just stay far far away from the stuff. I can do that, especially now that I feel the impact gluten has on me. I'm on day three now and it's finally beginning to slow, more gas and less diahria. I think that's "better". It scares the crap out of me that if just one pancake can throw me out of whack like this, what has it been doing to my body for the past 29 years!?! Wheat has been a staple of my diet, esspecially after I went veg. I ate Seitan all the time. No wonder I spent the better part of my 20's sleeping.

Anyhow, does anybody else have stories of how their slip ups effected them?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.