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Celiac Family: I Need Your Help

ohsroac

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ohsroac Apprentice
ohsroac
Posted

I called and ask for my daughters test results today. The doctor is going to be out of the office for a few weeks, yikes but the nurse loves me and gave me the results. My daughters 2nd biopsy said it was conclusive for Celiac Spur!

I hve tons of questions?

Does Ketchup have Gluten?

Mustard?

Cheese?

Ceral?

Help me get started this week..

Thanks,

Lena

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ptkds Community Regular
ptkds
Posted

Below is is list that has been posted on here before. Read it, start your own word file on your computer to copy and paste everything into, and start collecting recipes.

Good luck! You have come to the right place. There are lots of wonderful people here.

*********************

1. Take a breath!!! You're not going to be able to do this overnight, but it will all come together. We're all here to help, so try not to panic!!!

2. Buy some gluten free treats that make you feel like you can eat!!! I highly recommend Enjoy LIfe snickerdoodles, Chebe breads and pizza crust, Cause you're Special (glutenfreegourmet.com) and Pamela's brands (on sale now at (Company Name Removed - They Spammed This Forum and are Banned)), and Tinkyada pasta. If you don't have a good health food store near you, glutenfreemall.com is a good place to start and order from.

3. Go through your pantry and call the 1-800 #s on the backs of the package to see if they're gluten-free. Ask the manufacturers for gluten-free food lists. Most are great about this and will also send you coupons. The web also will have some companies' lists. This takes some time, but it helps you identify what you're already using that could be gluten-free.

4. Do the same with your med cabinet. Call about any drugs you take. This is sometimes harder to get info on, especially with generics. Vitamins, pain killers, cold meds, topical meds, everything has to be checked.

5. Move on to your health and beauty supplies next. This may not seem like a big priority, but it really is. Especially anything that goes on your hands. My daughter was VERY sick over some curel lotion we were using, then touching her bottles, etc. Unilever, lubriderm, and suave are some good companies for listing gluten ingredients, so that might be good to start with.

6. You don't have to throw out all your pans, but do be careful. I didn't realize this was an issue for months and months and got glutened several times. I wouldn't use cast iron, wooden spoons, colanders and scratched teflon pans. Other things will probably be ok if you wash them good and use the dishwasher!!!! Some people have used the self clean option on their oven to clean their cast iron.

7. Remember that a lot of pet foods have gluten. Wash your hands thoroughly after feeding animals. Be careful about the animals (dogs especially) licking you or the kids in the mouth or hands.

8. Be aware of Cross Contamination:

*Be careful for to have separate containers of Peanut Butter, jelly, butter, mayo, etc. Bread crumbs in common containers will cause a reaction. Squeezable condiments are great. We keep mayo, mustard, ketchup, and jelly this way.

*Make sure you thoroughly wash your hands between handling gluten and gluten free foods. Purell WILL NOT remove gluten, things have to be washed with gluten-free soap and water.

*Do not cook gluten-free food in a toaster that is used for gluten products.

*Glues often have gluten in them, so avoid using the paper towels with glue on them and watch him when playing with arts and crafts, washing his hands thoroughly afterwards. No licking envelopes, stamps, etc. No playing with the paper towel roll.

*DO NOT fry things in oil that has been used for things with gluten in them. Major source of contamination.

9. Stick with brands you know are safe:

These companies do not hide gluten and always list Wheat, Oats, Rye, or Barley if they use them:

Aunt Nelly's

Balance Oasis (Balance Bars)

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbell

Ahorsesoul Enthusiast
Ahorsesoul
Posted

In a nut shell, I say everything can have gluten in it. You will have to read the labels on everything. I've decided it's actually fun to read labels. I'm amazed at the things that have gluten in them--orange soda, root beer, soy sauce....

This site and the internet will give you plenty of suggestion of what to eat. Focus on them and not the "can't have thats".

If you dd has this problem, look into your family and see who else may have it. A gluten free kitchen will not hurt anyone.

BRS-07 Rookie
BRS-07
Posted

I just got diagnosed about 2 weeks ago and I would highly recommend the gluten free shopping guide. I don't know what I would do without it.

https://www.celiac.com/catalog/product_info...products_id=802

It makes shopping so much easier when you don't know how to read labels yet. Also, walmart brand products will either say gluten free on the back or identify wheat which is also really helpful. Something I just learned was to watch out for shreaded cheese, some of them use wheat so the cheese doesn't stick together, and paper plates can be coated in wheat for the same reason.

For Cereal: Fruity Pebbles and Cocoa Pebbles are gluten free

I know the walmart brand of ketchup is gluten free, I read a controversy a few days ago about hunts and heinz, so I don't know how safe those are...someone else might be able to help on that.

Delimex chicken taquitos are gluten free

Also if you have a HyVee close by where you live, they have a gluten free list online on their website, as does Trader Joes and Whole foods (which is being redone as of now).

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    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

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