Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Speed Recovery Progress?


helgih88

Recommended Posts

helgih88 Newbie

Okay, I have not been officially diagnosed but felt much improvement to my stomach and bowels after cutting out gluten. Most of my symptoms are still there though which I think are contributed to my ,,colitis'' or ,,leaky gut'' from the gluten. In fact I'm not sure, but it can't hurt to make extra precautions (that's one of the dilemmas of self diagnosis).

I feel like caffeine gives me a huge boost but it definitely has an affect on my GI, so If I've eaten something with gluten then caffeine speeds up next toilet trip (may sound weird, ha ha). But now when I have caffeine, I don't feel the same ,,punch in the stomach'' kind of feeling any more so I feel I have made a little progress. This is probably the reason stress has similar effect on me (adrenaline), but thankfully I've cooled down over the years so some might think I'm mellow (well, I act mellow for two reasons: I can't think fast, and stress only makes things worse). I was really hyper as a kid and I want to feel as energetic as back then.

So, regarding this recovery. I still have the usual symptoms of sleepiness, lack of memory and concentration. When I see rashes forming on my arms and legs (little red bumps, usually just one here and there), that's when I feel the worst. That's also why I want my intestines to recover faster so I don't get those allergy reactions, damn allergies. I notice it takes me forever to get to the point: What's your experience with marshmallow root caps? I'm probably going to the pharmacy and get some tomorrow. If you know of any other non-prescription drugs then that would help a lot.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gfresh404 Enthusiast
Okay, I have not been officially diagnosed but felt much improvement to my stomach and bowels after cutting out gluten. Most of my symptoms are still there though which I think are contributed to my ,,colitis'' or ,,leaky gut'' from the gluten. In fact I'm not sure, but it can't hurt to make extra precautions (that's one of the dilemmas of self diagnosis).

I feel like caffeine gives me a huge boost but it definitely has an affect on my GI, so If I've eaten something with gluten then caffeine speeds up next toilet trip (may sound weird, ha ha). But now when I have caffeine, I don't feel the same ,,punch in the stomach'' kind of feeling any more so I feel I have made a little progress. This is probably the reason stress has similar effect on me (adrenaline), but thankfully I've cooled down over the years so some might think I'm mellow (well, I act mellow for two reasons: I can't think fast, and stress only makes things worse). I was really hyper as a kid and I want to feel as energetic as back then.

So, regarding this recovery. I still have the usual symptoms of sleepiness, lack of memory and concentration. When I see rashes forming on my arms and legs (little red bumps, usually just one here and there), that's when I feel the worst. That's also why I want my intestines to recover faster so I don't get those allergy reactions, damn allergies. I notice it takes me forever to get to the point: What's your experience with marshmallow root caps? I'm probably going to the pharmacy and get some tomorrow. If you know of any other non-prescription drugs then that would help a lot.

I personally have never taken marshmellow root caps.. but I can tell you what I do/have taken that seem to have actually helped a lot.

A good multivitamin - definitely need to get one of these.

Enteric Coated peppermint oil pills - really only need these if you have bacterial overgrowth, but I actually did find them to be very soothing when I had IBS.

Flax Seed Oil/Omega 3 Fish Oil - Flax oil seemed to help somewhat, though I stopped taking them because I usually get bloated with oils, have yet to take fish oil.

Vitamin B Complex Supplement - I would highly recommend one of these, good for added energy and helping to rebuild/restore the villi.

Calcium Supplement - Really only needed if lactose intolerant, but also highly recommended.

Echinacea + Golden Seal Complex - Also highly recommended, as they have anti-inflammatory effects, but do not take for more than two as it will lose it's effect. Go two weeks on and two weeks off.

Digestive Enzymes - Have saved my life, def. get a good one of these with a lot of lipase if you are struggling with fats. Awesome for a boost of energy or if you're having any digestive issues, also helps in the absorption of nutrients and food allergies if any exist.

Aloe Vera - Haven't taken yet, but supposed to be very helpful and soothing to the intestines, however excess can cause D so you might want to avoid if you're having issues with it.

Royal Jelly - Supposedly very helpful in providing energy, I have also yet to try these.

Supplement can make all the difference in the world, they sure have helped me a lot. If you're going to get any of the above, I'd start off with a good multi, a vitamin B Complex, Echinacea + Golden Seal Complex, and digestive enzymes. These have gave me so much extra energy. Hope this helps, let me know if you have any other questions.

I think t

ang1e0251 Contributor

I'll add to that. I felt the sublingual B12 (methyl type) was a big help to me. They are soothing and give me energy and a sense of well being. Also increasing my dose of magnesium has really been great. It improved my BM's, relaxed the muscles in my neck and shouders and has improved my sleep a lot.

helgih88 Newbie

Great answers.

So far I've got digestive enzymes and some probiotics. The enzymes include something that's supposed to sooth the intestine and speed recovery. I also have a multivitamin and b vitamin. I even dug up some L-glutamine that should strengthen the immune system and is also an important nutrient for the intestine. I was going to get some lactaid but for some reason the pharmacy said they haven't had it for a while. I'm a little afraid to increase the dosages of the vitamins (A, D, E, K overdose) if I'm in fact not a celiac so this should do just fine until my doctor has done some testing. I'm scheduled to meet another one next Monday and very soon after that he's going to put some camera inside of me (I can never get over that part, ha ha). This way, I should get some results hopefully next week. I know the blood results are still on the way but this is inevitable if I want to see how much damage has been done (and to rule out some things). By now, I'm hoping for a positive on celiac disease since that is at least curable. I would give away so much just to be healthy so if I have to stop eating certain food, then so be it.

It's great to hear about your recovery, I hope I will have mine one day. I've been on a gluten free diet for a week now with little problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,347
    • Most Online (within 30 mins)
      7,748

    Emhope1107
    Newest Member
    Emhope1107
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.