Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What All Were You Tested For Before Celiac Diagnosis?


latteda

Recommended Posts

DreamWalker Rookie

Eeesh. Doctors can be ignorant. Reading this thread, I wonder why this disease isn't emphasized more in medical school.

Oddly, it was the positive test results for other disorders that lead a doctor (after numerous referrals) to figure out it was celiac & run the panel.

Diagnoses/tests months before I was diagnosed as celiac:

- Thyroid (+ hypo then normal then + hyper)

No one knew whether to treat me for hypothyroid or hyperthyroid so we just let it fluctuate while hunting for other things.

- Gallbladder (+) with a 24% ejection fraction then after a few months gluten free my ejection fraction was 91%. I still had that nasty thing taken out though - too much pain. (My new GI said that Celaic disease can result in bile duct disorders and was the cause of my gallbladder & pancreas issues.)

- H Pylori (-)

- Ulcers (-)

- At one point, I was told I had IBS (I Be Stumped IMHO)

- Rheumatoid Arthritis (+) yet this completely cleared up after going gluten free. I thought RH was a separate autoimmune disorder...

- Malnutrition/emaciated

Several years before being diagnosed with Celiac:

- Slightly anemic

- Lactose intolerant

- Vitamin B deficient

- Again with the thyroid

- Bulimic (by a university nurse who I TOLD NUMEROUS TIMES that I was not vomiting on purpose I couldn't hold food down and that's why I went to student health.) Then again, this is the same nurse who prescribed me cough syrup for asthma attacks. Seriously. What the hell?

- "The flu" (Student health again.) Who has the flu intermittently for ten months? During my last semester, I had "the flu" for a month straight and wound up being medically withdrawn against my will. (I lived in student housing & was labeled a risk to the university since I couldn't hold food down and was frequently passing out.)

- Asthma when I was a child that worsened until I required 5 daily meds & a "rescue" inhaler (albuterol and/or xopenex). I also had a nebulizer at home. Now I only take singulair. No asthma attacks. None! I never expected Celiac could contribute to or worsen asthma.

After being diagnosed with Celiac:

- osteoporosis & osteopoenia. Another one I don't understand. Apparently, my bone density varies throughout my body? My old GI left a vague message on my voice mail saying I had osteoporosis & to take 1.5g of calcium with Vit D per day. I ordered my records but I don't understand what the different bone-density values mean. (Well, I suppose my new GI will give me his opinion when I head back this week. It took awhile for the records to arrive. Hopefully, it's just osteopoenia....

- Now looking into bile-duct disorders since having my gallbladder taken out.... I'm still having pain issues. Yet, it immediately solved the throwing-up-bile problem that surfaced a few days before I had surgery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748

    Barrie S
    Newest Member
    Barrie S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.