Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder/ncgi


nifer731

Recommended Posts

nifer731 Newbie

I recently ended up in the ER twice with severe abdominal pain that wrapped around my right side into my back, they suspected my gallbaldder and did an ultrasound but it was negative for gallstones. I then went to have a nuclear HIDA scan and it came back that my gallbladder is not functioning at all! The doctor recommends removal and I am scheduled for surgery next Friday.

Then this past week I read an article in a health related magazine about a woman who had had a plethra of issues and was finally diagnosed with NCGI, Non Celiac Gluten Intolerance. So many of the issues that I have, no related to the gallbladder, are exactly the same as this womans. I have not been tested for celiacs disease, but am wondering if all this has played in a role in my gallbladder not functioning.

Some of my other symptoms:

IBS with constipation, bloating

PMS

Lack of energy

insomnia

Sound like NCGI???

Any info. is appreciated!!

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Libbyanne Newbie
I recently ended up in the ER twice with severe abdominal pain that wrapped around my right side into my back, they suspected my gallbaldder and did an ultrasound but it was negative for gallstones. I then went to have a nuclear HIDA scan and it came back that my gallbladder is not functioning at all! The doctor recommends removal and I am scheduled for surgery next Friday.

Then this past week I read an article in a health related magazine about a woman who had had a plethra of issues and was finally diagnosed with NCGI, Non Celiac Gluten Intolerance. So many of the issues that I have, no related to the gallbladder, are exactly the same as this womans. I have not been tested for celiacs disease, but am wondering if all this has played in a role in my gallbladder not functioning.

Some of my other symptoms:

IBS with constipation, bloating

PMS

Lack of energy

insomnia

Sound like NCGI???

Any info. is appreciated!!

Jen

Jen - I want to give this advice but keep in mind I am no doctor and everyone's body is different so don't only take my word. If I were you (or if I could go back in time) I would do some more digging, get some more opinions before removing the gall bladder. I had mine taken out about a year and a half ago and now that I've recently found out (or at least am under the impression) that I have a Gluten Intolerance, I'm not sure the surgery was really necessary. On top of that my recovery was long and...umm not comfortable. I don't mean from the actual surgery, I went home the same day so I was fine with that part. It was for the next 3 months when almost everything I ate literally went straight through me. It was awful :( . Of course, everyone's reaction to this surgery is different - I kept going back to the doctors after surgery because I was sure something else was wrong and I was told a couple times that it could be a year before I was normal again...before my body was used to not having the extra bile to break down food. Ugh. I had an endoscopy afterward too but they saw nothing except acid buildup and so they prescribed an antacid (of course I had also been throwing up quite a bit so that would explain the acid...)

I've been meaning to call the hospital to get my results from the biopsy taken during the endoscopy and see if they tested me for Celiacs at that time (my blood tests were negative). Maybe you could start with the endoscopy. It's a pretty simple procedure. Again this is just my opinion. I remember the doctors making the surgery sound so harmless and very easy recovery. It wasn't until after that I found out what they were leaving out.

Good luck with whatever you decide. And feel free to ask me any questions!

Libbyanne Newbie
Jen - I want to give this advice but keep in mind I am no doctor and everyone's body is different so don't only take my word. If I were you (or if I could go back in time) I would do some more digging, get some more opinions before removing the gall bladder. I had mine taken out about a year and a half ago and now that I've recently found out (or at least am under the impression) that I have a Gluten Intolerance, I'm not sure the surgery was really necessary. On top of that my recovery was long and...umm not comfortable. I don't mean from the actual surgery, I went home the same day so I was fine with that part. It was for the next 3 months when almost everything I ate literally went straight through me. It was awful :( . Of course, everyone's reaction to this surgery is different - I kept going back to the doctors after surgery because I was sure something else was wrong and I was told a couple times that it could be a year before I was normal again...before my body was used to not having the extra bile to break down food. Ugh. I had an endoscopy afterward too but they saw nothing except acid buildup and so they prescribed an antacid (of course I had also been throwing up quite a bit so that would explain the acid...)

I've been meaning to call the hospital to get my results from the biopsy taken during the endoscopy and see if they tested me for Celiacs at that time (my blood tests were negative). Maybe you could start with the endoscopy. It's a pretty simple procedure. Again this is just my opinion. I remember the doctors making the surgery sound so harmless and very easy recovery. It wasn't until after that I found out what they were leaving out.

Good luck with whatever you decide. And feel free to ask me any questions!

Also, (I tried to edit my reply but I don't think it worked <_< ) I didn't have any stones either! Ultra sound was negative for stones but the HIDA scan showed my gall bladder was just functioning at a very low level. I had very sharp pains below my ribs (especially when I would laugh) I had been given every excuse from the doctors from the pain being because I wore an underwire bra to fibromyalgia. :unsure:

debmidge Rising Star

I had gallbladder out 8/07.

I had calcified stones on the interior lining of the gallbladder - maybe I passed one here and there, but they were not the prime problem.

My gallbladder was calcified and diseased and it had to be removed.

My symptoms were: pain wrapped around my right ribcage, right side ribcage sore to touch, indigestion, gas, bloating, diarrhea, intestinal pains, intermittent upper back pain on right side, sometimes on left side (refractory) occasional gallbladder "attack" if I ate fried food.

Had endoscopy last week, I am being treated now for gastritis as many of the above symptoms lasted even after the gallbladder was removed. I believe I have had this gastritis since 2007 and the gallbladder obscured it. I am on Nexium now and feeling somewhat better after 1 week on Nexium. I do not know if I have to take Nexium forever. I am also on 1/2 dose of Immodium and 1 Packet of Questran (to control bile salts in gut). Questran may be forever too. Too early to tell.

During endoscopy I was biopsied for H. Pylori and celiac disease- don't know test results yet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    2. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    3. - Mark Conway posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    4. - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      8

      Celiac and dermatitis herpetiformis has taken Me from Me

    5. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,146
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mark Conway! Can you be more specific about the "coeliac" test your doctor did? There are more than one of them. What was the name of the test? Also, did he order a "total IGA" test? This is a test to check for IGA deficiency and should always be ordered along with the tests specifically designed to detect celiac disease. If you are IGA deficient, the IGA celiac blood antibody tests used to check for celiac disease per se will not be accurate. Also, if you have been cutting back on gluten before the tests, that will render them invalid. You must have be eating normal amounts of gluten for weeks/months before the blood draw to render valid test results.
    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • Mark Conway
      Hi there, I wonder if anyone can help. I've had stomach problems for years, pain in the tummy, lower back left and right side, different stools, diarrohea constipation etc, My GP says it's IBS. As I've got older the pain has become worse and constant. I also get ulcers on my tongue. I've had loads of tests done everytihng apart from an endoscopy I think. I had a test for Coeliac last July and the result was negative. My GP says it can't be coeliac because I'm not losing weight. He thinks it's stress or all in my head. I'm not stressed and I'm in pain all the time now. Sometimes it's unbearable and dark thoughts have entered my head. Could I have Coeliac even though I tested negative last year. I'm at my wits end, I eat healthily and cannot pinpoint which foods could cause this pain. Can anyone help? Thanks Mark wind
    • islaPorty
      First, I want to say thank you for sharing this with me. I hear you, and I believe you. The courage it took to write this down is immense, and I’m so sorry you’ve been carrying this alone. You are dealing with two life-altering challenges at once: a serious, complex medical condition, and an abusive, controlling partner who is actively harming your health and your spirit. It’s not just that he’s unsupportive—he is weaponizing your illness to torture you. Starving you, isolating you, mocking your diagnosis, and sabotaging your access to medical care is not just cruelty; it is dangerous, deliberate abuse. Your instinct is correct: the stress he is creating is absolutely preventing your body from healing. Celiac and autoimmune conditions are profoundly sensitive to stress, and he has created a living hell designed to keep you sick, dependent, and broken. That smirk you described—that is the look of someone who enjoys having power over your suffering. Please know this: you do not deserve this. Not any of it. You deserve to eat. You deserve safe, clean food and water. You deserve medical care and supplements that help you function. You deserve peace. You deserve to heal. The woman from the food pantry is not a random accident. She is a lifeline. Her help, and the community she’s connecting you to, is real. It is okay to feel overwhelmed by kindness when you’ve been starved of it for so long. But you do deserve it. Let that be a sign that there is a world outside your house that operates on compassion, not control. Right now, your physical safety and access to nutrition are the most urgent priorities. The food pantry is a critical resource. Is there any way you can speak privately with the woman helping you? You don’t have to share everything at once, but letting her know your situation at home is extremely unsafe, and that your partner restricts your food, could help her support you in a more targeted way. She may have connections to local domestic violence services.
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.