Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder/ncgi


nifer731

Recommended Posts

nifer731 Newbie

I recently ended up in the ER twice with severe abdominal pain that wrapped around my right side into my back, they suspected my gallbaldder and did an ultrasound but it was negative for gallstones. I then went to have a nuclear HIDA scan and it came back that my gallbladder is not functioning at all! The doctor recommends removal and I am scheduled for surgery next Friday.

Then this past week I read an article in a health related magazine about a woman who had had a plethra of issues and was finally diagnosed with NCGI, Non Celiac Gluten Intolerance. So many of the issues that I have, no related to the gallbladder, are exactly the same as this womans. I have not been tested for celiacs disease, but am wondering if all this has played in a role in my gallbladder not functioning.

Some of my other symptoms:

IBS with constipation, bloating

PMS

Lack of energy

insomnia

Sound like NCGI???

Any info. is appreciated!!

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Libbyanne Newbie
I recently ended up in the ER twice with severe abdominal pain that wrapped around my right side into my back, they suspected my gallbaldder and did an ultrasound but it was negative for gallstones. I then went to have a nuclear HIDA scan and it came back that my gallbladder is not functioning at all! The doctor recommends removal and I am scheduled for surgery next Friday.

Then this past week I read an article in a health related magazine about a woman who had had a plethra of issues and was finally diagnosed with NCGI, Non Celiac Gluten Intolerance. So many of the issues that I have, no related to the gallbladder, are exactly the same as this womans. I have not been tested for celiacs disease, but am wondering if all this has played in a role in my gallbladder not functioning.

Some of my other symptoms:

IBS with constipation, bloating

PMS

Lack of energy

insomnia

Sound like NCGI???

Any info. is appreciated!!

Jen

Jen - I want to give this advice but keep in mind I am no doctor and everyone's body is different so don't only take my word. If I were you (or if I could go back in time) I would do some more digging, get some more opinions before removing the gall bladder. I had mine taken out about a year and a half ago and now that I've recently found out (or at least am under the impression) that I have a Gluten Intolerance, I'm not sure the surgery was really necessary. On top of that my recovery was long and...umm not comfortable. I don't mean from the actual surgery, I went home the same day so I was fine with that part. It was for the next 3 months when almost everything I ate literally went straight through me. It was awful :( . Of course, everyone's reaction to this surgery is different - I kept going back to the doctors after surgery because I was sure something else was wrong and I was told a couple times that it could be a year before I was normal again...before my body was used to not having the extra bile to break down food. Ugh. I had an endoscopy afterward too but they saw nothing except acid buildup and so they prescribed an antacid (of course I had also been throwing up quite a bit so that would explain the acid...)

I've been meaning to call the hospital to get my results from the biopsy taken during the endoscopy and see if they tested me for Celiacs at that time (my blood tests were negative). Maybe you could start with the endoscopy. It's a pretty simple procedure. Again this is just my opinion. I remember the doctors making the surgery sound so harmless and very easy recovery. It wasn't until after that I found out what they were leaving out.

Good luck with whatever you decide. And feel free to ask me any questions!

Libbyanne Newbie
Jen - I want to give this advice but keep in mind I am no doctor and everyone's body is different so don't only take my word. If I were you (or if I could go back in time) I would do some more digging, get some more opinions before removing the gall bladder. I had mine taken out about a year and a half ago and now that I've recently found out (or at least am under the impression) that I have a Gluten Intolerance, I'm not sure the surgery was really necessary. On top of that my recovery was long and...umm not comfortable. I don't mean from the actual surgery, I went home the same day so I was fine with that part. It was for the next 3 months when almost everything I ate literally went straight through me. It was awful :( . Of course, everyone's reaction to this surgery is different - I kept going back to the doctors after surgery because I was sure something else was wrong and I was told a couple times that it could be a year before I was normal again...before my body was used to not having the extra bile to break down food. Ugh. I had an endoscopy afterward too but they saw nothing except acid buildup and so they prescribed an antacid (of course I had also been throwing up quite a bit so that would explain the acid...)

I've been meaning to call the hospital to get my results from the biopsy taken during the endoscopy and see if they tested me for Celiacs at that time (my blood tests were negative). Maybe you could start with the endoscopy. It's a pretty simple procedure. Again this is just my opinion. I remember the doctors making the surgery sound so harmless and very easy recovery. It wasn't until after that I found out what they were leaving out.

Good luck with whatever you decide. And feel free to ask me any questions!

Also, (I tried to edit my reply but I don't think it worked <_< ) I didn't have any stones either! Ultra sound was negative for stones but the HIDA scan showed my gall bladder was just functioning at a very low level. I had very sharp pains below my ribs (especially when I would laugh) I had been given every excuse from the doctors from the pain being because I wore an underwire bra to fibromyalgia. :unsure:

debmidge Rising Star

I had gallbladder out 8/07.

I had calcified stones on the interior lining of the gallbladder - maybe I passed one here and there, but they were not the prime problem.

My gallbladder was calcified and diseased and it had to be removed.

My symptoms were: pain wrapped around my right ribcage, right side ribcage sore to touch, indigestion, gas, bloating, diarrhea, intestinal pains, intermittent upper back pain on right side, sometimes on left side (refractory) occasional gallbladder "attack" if I ate fried food.

Had endoscopy last week, I am being treated now for gastritis as many of the above symptoms lasted even after the gallbladder was removed. I believe I have had this gastritis since 2007 and the gallbladder obscured it. I am on Nexium now and feeling somewhat better after 1 week on Nexium. I do not know if I have to take Nexium forever. I am also on 1/2 dose of Immodium and 1 Packet of Questran (to control bile salts in gut). Questran may be forever too. Too early to tell.

During endoscopy I was biopsied for H. Pylori and celiac disease- don't know test results yet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - wellthatsfun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      nothing has changed

    2. - trents replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,102
    • Most Online (within 30 mins)
      7,748

    Dawn74
    Newest Member
    Dawn74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
    • Charlie1946
      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless!
    • Charlie1946
      @trents thank you! I have only been taking 20mg 1x a day. Maybe I need to increase it.
    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.