Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Down To Just Meat, Fruit And Veggies


angieInCA

Recommended Posts

angieInCA Apprentice

I just have to whine for a bit so please bear with me. On top of having celiac disease I also have a problem with reactive hypoglycemia.

2 weeks ago I saw my Nutritionist and G.I. to discuss some on going sensitivities I have been having. I have figured out that I can't handle Soy or Corn and I'm already off dairy and now I'm suspecting rice. So it was decided that along with the soy, corn and dairy I should remove all grains, any processed sugar (honey is allowed) and peas from my diet.. Basically to remove all processed foods except for peanutbutter (thankfully I didn't have to give up my peanutbutter) Thank God I love veggies and fruit and I know how to cook.

The new Diet really isn't the problem, up untill Monday I had been doing really well and wasn't craving a thing. Tuesday I got glutened accidently by some stray crumbs where someone in my house used my peanutbutter and when I had my daily apple and peanutbutter I didn't notice the crumbs untill too late. <_<

Ever since I have been on the worst rollercoaster of agony and cravings. All of my muscles are cramping up (my arms hurt so bad I can barely lift them), I have had a non-stop migraine, brain fog, and the big D. On top of that I am having massive cravings for all the forbidden foods. It's driving me crazy. I could kill for a Double Quarter Pounder with Cheese and I HATE McDonalds! On the way home from the store today (had to get a fresh jar of peanutbutter) I had to force myself not to stop at the local donut shop for one or half a dozen of their fabulous Bavarian cream filled chocolate dipped donuts. I have never been a person focused on food but now that I have to think about it every day all day long, because I feel like I have to constantly be thinking about what my next meal will be and monitoting my blood sugar so it's not too low, I now feel like all I do is think about food. I'm becoming so sick and tired of eggs and chicken and tuna. Up until now I've been really positive and have not thought about what food I can't have.

Please excuse the rant. :unsure: I know there are others dealing with much bigger issues than this but today has been a tough day <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer

Hi Angie,

I'm so sorry to hear about the awful week you're having. It does get hard to take, doesn't it?

After totally crashing after Easter, I've been digging around for more answers, and suspect that reactive hypoglycemia is something I'm also dealing with. It's maddening how little consensus of opinion there is about how to manage it!

After reading "Hypoglycemia: The Classic Healthcare Handbook" by Saunders & Ross, I'm off all sugar (inc. honey), refined carbohydrates, dried fruits and even root vegetables and the sweeter fruits. I'm still eating grains, but only whole, and in small quantities. I don't know what to think about legumes - opinions are totally polar on those.

I haven't been glutened lately, but it's that time of month for me, so I'm craving carbs and sugar like crazy. And creamy - anything creamy - but I'm having trouble with dairy, too. What I wouldn't give for a bowl of cereal! Sometimes it's just hard to feel satisfied on meat and veggies and a little fruit.

Since going off all that, I've been extremely weak and tired. This is what the authors predicted, but it stinks just the same. Folding the laundry feels like a workout. It's so frustrating that when we feel the worst, we need, where food is concerned, to do the most for ourselves - no prepared foods, no "out" food...

Whine, whine! Sorry; this is YOUR whine! Mainly just wanted to say that I feel your pain. Hang in there!

angieInCA Apprentice
And creamy - anything creamy - but I'm having trouble with dairy, too. What I wouldn't give for a bowl of cereal! Sometimes it's just hard to feel satisfied on meat and veggies and a little fruit.

I dreamed about a bowl of frosted shredded wheat last night :rolleyes:

Thanks for understanding and feeling my Whine ;)

sickchick Community Regular

Hiya Sweetie!

I am so sorry about your cross contamination...

I didn't know anyone else who loves apples & peanut butter like I do :):):)

I just found out last week I am rice intolerant

So far, I can tolerate corn...

good luck & be well B)

xox

Lisa16 Collaborator

Angie, I am in pretty much the same boat you are. Here are a few things that help me.

Can you have almond milk? If so, that might satisfy some of the creamy cravings.

Nuts have saved me-- I love the flavored almonds and cashews. That also helps and they seem to be very important. You can make cashew butter or even try some sunbutter (made from sunflower seeds-- it is surprisingly good.)

Also, take an avocado and mix it with a little honey-- kind of puree it together. I know it sounds gross, but it tastes very much like ice cream in a weird way. You might have to close your eyes. Lots of cultures eat avocados sweet.

Also, if you take a tomatoes a blend it with a bit of green onion and add olive oil and a smootch of apple cider vinegar, you great a great dressng for avocado chunks.

Fresh squeezed orange juice is great too-- it satisfies the sweet cravings.

Dark chocolate does not have to have milk in it-- that might be something to hunt down too.

Also, I bought this cool machine from cuisinart that has a slicer in a spinning drum. You put a potato in there (or a sweet potato-- these are great!) and you have istant potato chips that you can fry in oil. I put some paprika on mine for a little spiciness.

These things make me feel less deprived. And if you can get the soy back, you have even more stuff you can play with.

Hang n there!

Lisa16 Collaborator

Oh! I forgot coconut milk/cream. You can sweeten that with honey and eat it with fruit. Sprnikle some nuts of there or a nice mint leaf.

You can also make a kind of ice milk out of it. Make mix in some fresh orange juice and freeze.

Then there are sorbets. If you boil a little water and honey and add fruit juices (or mint or basil or whatever floats your boat) you can freeze this for an easy sorbet. You wiull have to stir it at some point to keep it from forming crystals.

mattathayde Apprentice

i feel you on the cravings, and they seem to get worse the worse i feel. maybe you could find a place to get a burger at (sans bun) that fits your dietary requirements. i have 5 guys here and they are very good about being attentive to gluten issues so i go there when i want to be lazy and have something tasty

try to find something to keep your mouth busy, sun flower seeds, gum that meets your requirements, a candy that meets your requirements (if possible). just find something to do and that should help some, i know when i am sitting around at home i get bored and want to eat, or just do something with my mouth (i eat a lot of sun flower seeds, picked it up from my dad)

hope you get it all figured out

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,461
    • Most Online (within 30 mins)
      7,748

    Shannon7274
    Newest Member
    Shannon7274
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.