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Invitation To Good Health


teemaree

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teemaree Apprentice

I have to make mention here, of my doctor...

I feel lucky and blessed to have found them, and who knows?... maybe I was pointed towards them for good reason?

All my life I presented symptoms of celiac, I never knew anything about it, but I would present to my GP with all the symptoms, they would do a blood test and say, yeah some strange results and things were left there... without getting any help at all..

The past year has been a nightmare for me, with depression, anxiety, sickness, headaches, pain .

I got to the point that I just wouldn't be bothered going to the doctors , because I felt it was total waste of my time, money and the doctors time...

But it was apparent to everyone around me, that I needed some kind of help. As I lost so much weight and depression was taking over...

So I looked on the net for a clinic that had a psychologist, I believed that was what I needed.

I made an appointment at this clinic "Invitation to good health"

A nurse spent an hour with me, interviewing me, and taking all my health details from the past.

Then I saw the GP... he knew immediately what was wrong, in fact he pointed out symptoms to me, that I didn't even recognize as having, like skin rashes, feeling cold all the time... etc etc..

I just thought they were normal...that everyone was like that!

He ordered blood tests, but I had to wait two months before seeing the doctor again to get the results, but in the mean time he told me to go gluten-free and soy and dairy free..

I did as requested and I was astounded at the difference in me... the way my brain cleared of being foggy, I was brighter, happier and felt good!

I returned to get the results, and every thing was at the lowest level it could be, vitamin B, D calcium, zinc, iron etc....

he was very concerned and didn't want to bombard my system with vitamins because they would only make me feel ill... so he gave me zinc to start with

but then this past month, things changed... here I was completely gluten-free , loosing 2 kg a week , and depression anxiety was taking hold of me in a huge way... headaches returned .

I was feeling angry sad distant I hated life ...

I knew I needed to get help quick, because I wasn't sure I could go through another day without going over the edge of depression and weight loss..

I was desperate, and rang the doctors office, my next appointment wasn't for another month...

But I said please can you get me in.....

They were so accomadating , they said we can try and squeeze you in between patients today... I couldn't go because I had to go to work, so they put me in the very next morning...

Mind you.. I rang my old ordinary GP first, begging to be seen... and they couldn't get me in for a week... and I knew it was useless seeing him, cause he is not at all interested and just wants his fee and sends you out the door...

So I went to invitation to good health the next morning....

my husband went along with me, because he wanted something done for me... he has watched my decline and he can't help me...

The nurse took me in immediately and went over what has been happening , weighed me and saw the weight I had lost, I guess she also saw my depression and lethargy. The doctor came in and they spoke to me about having a bio chemist make me up some capsuals of vitamins etc... that would suit me and meet my own personal body needs ... I would be taking 10 per day....

I hated the thought of that... because I don't like taking tablets...

But I know if I am going to get my body in any type of shape to cope, I will need these to help me...

The nurse also made an appointment for me to see their psychologist, to help me deal with the anxiety and problems... they don't want to give me any antidepressants, and with couselling we maybe able to tackle the issues that are preventing me from eating and the sadness and anxiety I have.

Next is an appointment with the psychologist, doctor, nurse, dietician and me.... and a plan will be made up for me... to help me mentally, physically and help me with eating.

The thing that amazes me... is they truly want to get me on the track back to life....

They don't watch the clock and say your 5 minutes is over.. we don't know what to do for you...

get out of here so I can see the next person....

They spent time examining and asking questions and explaining... they give me a direction to follow to help me on the right path to helping myself.

They try and find ways of helping me with the costs of getting well....

As I sat there with the nurse, all I could repeat over and over.... was THANK YOU... THANK YOU..... THANK YOU.....my eyes were filled with tears, because the emotions of getting help were all new to me.... No one cared , noone bothered to point me in the right directions to help myself....till now..

So at last I now have hope...

I feel I am in the hands of people that really want to save me and help me.... I thought I would forever be in this black hole till it took my life... now I see a glimmer ahead, and a rainbow to climb


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Lisa Mentor

I am happy that you are on the road to good health with people who care.

mamabear Explorer

Hang in there,teemaree. It will get better. Promise!

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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