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Low Endurance?


r0ckah0l1c

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r0ckah0l1c Apprentice

Has anybody else had problems catching their breathe and having to stop running or strenous exercise not because you are physically tired but because you have a difficult time breathing ? I wonder if it is celiac related? I suspect a dairy intolerance too but I am afraid of giving it up because I already have enough time getting all my nutrients being gluten free.

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FMcGee Explorer

I've been having this problem, too. I've only been gluten-free for a little over a week, but I was having this problem when I was eating gluten, too. I haven't seen an improvement in this area yet, but I understand that I will, eventually. I love to exercise and push myself, but haven't had it for the last couple of months. Have you had your iron and vitamin levels checked?

MySuicidalTurtle Enthusiast

Only when I am outside and the pollen levels are high.

Anna and Marie Newbie

I have a terrible time breathing too! It feels as if I'm running against a brick wall! The air never seems to reach my lungs and I see spots and get really dizzy. I have noticed a difference with the dairy free diet. Maybe you hvae a tree nut/peanut allergy? Too much potassium? I know its a lot to cut out and it's ridiculously hard to get calories, but you could try for like a month and see if it helps. Hope it all works out,

~Anna

-- I run short distances now in spurts, it helps. I hope to run longer than two miles one day without passing out. Good luck!!!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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