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Dealing With Reactions


Hani

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Hani Newbie

I'm fairly new to this whole coeliac thing. What can I do when I have a reaction? Right now I take a Gravol and a sleeping pill, but it doesn't seem to stop the nausea and stomachache at all, and half the time the sleeping pill just comes back up anyway, so I can't at least drug myself in order to sleep it off. Any suggestions?


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MySuicidalTurtle Enthusiast

I personally do not take anything unless I have to. I just want everything to come out of my system. However, it sounds like your symptoms are not like mine, though. So, you may try teas and peppermint to help with the tummy ache and nausea.

maile Newbie

some things that have worked for me: a little aloe vera juice mixed with fruit juice or ginger tea can help the nausea and if it just won't go away try an acid reducer such as Zantac

mysecretcurse Contributor

I don't know, I am wondering the same thing. I've been on the diet for years now, and when I get glutened, the reaction is mostly in my skin, in the form of big, painful and itching cysts all over my face and sometimes a rash on my body as well. Nothing I have ever found does anything to stop the reaction. The most I can do is put something anti bacterial on the cysts to keep them from becoming a worse infection. I kind of envy the people who don't have a skin reaction, I wish I could just vomit and have D for a few days vs looking like a leper for the next month. (and yeah it takes a month for them to go away)

mattathayde Apprentice

my glutened reaction is more so in the lower gut and some times the mental stuff, it doesnt take much for the D but it takes some for the mind fog some times.

i honestly just load up on the imodium and if my mind fog is bothering me and its not to late in the day i drink a red bull, the last time i got glutened (wasnt really bad just was the lower stuff) i was taking a good multi vitamin that has a bunch of Bs in it so that helped.

look to mint as an anti nausea, if altiods are ok for you to consume get some pepermint ones and pop those, i usually suck on one most of the time and tuck it in my upper cheek need to me 6 and 12 year molars (the 2 farthest back ones unless your wisdom teeth had room to come in) and it lasts a good long while (hour give or take) but still gives a good bit of mint. peppermint teas work well (i had a friend that used those when he was doing cancer treatments, it was an experimental treatment that only made him sick for a few hours after the treatment but he couldnt keep much if anything down until the next morning... but what ever he is in remission now so)

you may be able to talk to your doc and get an anti nausea med that would be a suppository if you want a remedy to it but that may not be enjoyable

-matt

Pegleg84 Collaborator

GINGER! it's my best friend. It's an excellent anti-nauseant that works just as well as gravol without the sleepy-stones side effects. You can get capsulated ginger in the vitamin section of your health food store, drink ginger tea, or Gravol now puts out a ginger pill. It will only help with stomach upset and lessen your D problems, but it does work quite well.

try it out

Peggy

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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