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Is This Finally A Set Diagnosis?


Sin3str0

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Sin3str0 Rookie

A little background first,

A couple of months ago my Doctor suggested that I may have celiac disease. I went Gluten Free but at the same time had moved out of my home and started to feel better actually. I was so relieved that I could have finally have found what was making me ill all this time.

Fast forward 5 months later, I move back home and ALL of my symptoms return with a vengeance, even though I had been gluten-free for 6 months now. I was still gluten-free, so I was baffled at would could possibly be making me sick. Not only baffled, but frustrated and heart broken.

So I begin to do some detective work and I find a disgusting looking garden of Mold in parents AC unit, because I figured that whatever was making me sick had to be related to their home. I move out and symptoms improve, but not fully.

I go back to my doctor and get tested for Celiac's via a basic allergy panel, it came back negative, so I had no clue what else it could be.

I decide to do the A.L.C.A.T allergy test and behold! It comes back that I have a severe reaction to gluten! I stop eating gluten again, feeling somewhat better...

( Thank some kind of God! )

So my question to you, my gluten-free family, is that it? Seeing that I am reacting to Gluten based off my Allergy Panel results from A.L.C.A.T and that I do feel a difference when I avoid it, can I finally be sure that I have Celiac Disease?

Why would mold affect me so severely? I mean, mold is terrible as it is, but could I have such a strong reaction to it because of Celiacs or another Autoimmune problem?


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MySuicidalTurtle Enthusiast

If you feel good off gluten then that is a big sign that you shouldn't eat it. You may have a gluten intolerance or Celiac Disease. As for the mold thing, I don't know, but a lot of people get sick from mold.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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