Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contamination Issue?


lainey461

Recommended Posts

lainey461 Rookie

I have been gluten free for about a month, probably only strictly, without mistakes, 2 weeks. Today, I cleaned out a cabinet, with all gluten foods, flour, crackers, snacks, and cereal. Washed it to keep my new gluten free food in, now I am not feeling well at all, could touching the boxes, and cleaning the shelf (had a bit of spilled flour) cause a reaction?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

It is possible that that caused a reaction. When I am working with hay I notice I get all stuffed up and sneeze a lot and the same when I am helping bake something not gluten-free. Once I stopped to think about it, I figured that was why. I also get skin reactions, though.

larry mac Enthusiast

I'd say it was probably only a coincidence. Lot's of times we Celiacs get the "not feeling quite right " attacks. 99% of the time I can't say with any certainty what caused it. Sometimes, I even suspect one cause could be mental factors.

I come back from a trip and discover a big box of Bisquick in the pantry. My stepdaughter has made chicken & dumplings. I immediately get all worked up (angry) over what I consider an act of betrayal (by my wife for condoning it and planning on me not finding out, they forgot to get rid of the box) and worry over how much contamination there is. Despite their protests that they used "a seperate pot", I know there were many other ways for the gluey, doughy, dumpling stuff to contaminate everything in the kitchen. Of course I'm then condidered " a drama queen" because why worry about it "the dishwasher completely cleans everything". I'm sorry but that's not enough to convince me.

The point I'm trying to make is there are a myriad of reasons we have for not feeling quite right. Sometimes we may get a little accidental or inadvertant gluten ingestion. Sometimes it could be something else we ate completely unrelated to gluten that hits us a little wrong, or just doesn't sit well with our constitution that day. Sometimes it's just a mind over matter thing, a little extra stress, a combination of emotional or mental factors.

I also would think that for those like MST with additional skin reaction problems, the whole mental stress aspect would exponentially increase. Then you'd have to worry not just about what you eat, but what you contact. Extra bummer. Sorry MST.

Good luck L461, lm

ps, I guess I am a drama queen sometimes. :rolleyes:

lainey461 Rookie

Hi LM,

Thanks for replying! As for drama queen, I enjoyed your post, and it is so true! Not sure what happened to me, gluten ingestion, or something else, but I was up till 5:00 am with severe stomach pains, I almost went to the ER! But at 5, when they subsided, I was able to fall asleep. No pain now, but totally drained!

As for your wife and daughter, I don't think they meant you any harm! Hopefully they didn't cause any! Someone who doesn't have this, doesn't realize how sick we can become with such a small amount! Its only been a short time for me, but I can already see how people do not understand.

Best of luck to you! Thanks again!

Elaine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.