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Celiac Blood Test Pending...


turbo

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turbo Newbie

First thing I read online is that these tests look for antibodies. Since I'd already suspected a wheat intolerance issue, I'd greatly limited wheat in my diet (for months prior to this). I had some the weekend before the blood was taken (4 and 5 days before), will that alone be enough to have the antibodies present or should I expect a possible false negative?

I told the doctors I'd all but eliminated wheat from my diet...


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MySuicidalTurtle Enthusiast

Welcome to the board!

You really need to be eating gluten for a few ways or weeks to get the right test result. Maybe you were eating enough, though.

turbo Newbie
Welcome to the board!

You really need to be eating gluten for a few ways or weeks to get the right test result. Maybe you were eating enough, though.

Yeah, that's what I was afraid of. Now if the result is negative, I'm always going to wonder...

MySuicidalTurtle Enthusiast

If you go 100% gluten-free for awhile (weeks or months) and see an improvement then you will know. If you want an official doctor diagnosis, then you have to eat gluten everyday for at least 2 weeks.

turbo Newbie
If you go 100% gluten-free for awhile (weeks or months) and see an improvement then you will know. If you want an official doctor diagnosis, then you have to eat gluten everyday for at least 2 weeks.

If this thing comes up negative I think I will do that and get a second opinion. Like I said, I've kept a gluten to very tiny levels in my diet for some time (maybe average having a little of it once a week). I'm must admit, I'm paranoid that if I bother them with this concern re: the test, they'll think I'm a hypochondriac.

I'm just really interested b/c after the doctor suggested it (b/c of my wheat-intolerance-like symptoms and arthritis) Thursday, I looked it up and a lot of little things I have might line up for it... poor digestion of wheat, arthritis since age 14, ADD-like brain fog, fatigue&mild depression, geographic tongue...

I also am not sure if this is normal for people with Celiac: do people tend to feel foggy right after a big wheat/pasta meal, and then get a throbbing headache?

Anyway, thanks, I appreciate your replies.

MySuicidalTurtle Enthusiast

That sounds like a very common Celiac reaction! The brain fog can be so annoying and bothersome!

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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