Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms When First Going gluten-free


foodiegurl

Recommended Posts

foodiegurl Collaborator

Wow, I have been gluten-free now for almost 2 months. It has definitely gotten easier, but still depressing at times.

Anyway, this might be a weird question, but I was wondering what people's symptoms were the first few weeks of going gluten-free. It seems when I first started gluten-free, those first couple of weeks were really difficult on my tummy, and considering i had no symptoms prior to going gluten-free, it was very frustrating.

I don't seem to be at sensitive now as i was those first 2 weeks, but knock on wood!!

Those first couple of weeks, it seemed if I ate certain things my tummy would be gurgling, like i had gerbils running around in there and i would get a tummy ache, and feel icky and end up taking tums and/or pepto.

That was over a month ago, and I am just wondering, is that typical when you first go gluten-free...for your body to adjust to all the sudden absorbing stuff it hadn't in a while? I am just so scared I will get those feelings again, but am hoping it was just a beginning thing...if that makes sense.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Many posters have reported they felt worse before they felt better. It seems to be common. I felt increasingly well but I also messed up a lot. I wish I had discovered this forum sooner!

foodiegurl Collaborator

so, did we feel worse in the beginning because our intestines were in "shock" from what it is now about to absorb? And then over time, it gets used to it?

just trying to figure it all out :)

Pegleg84 Collaborator

I think that's a good theory. Our bodies are like, woah! what do I do with all this stuff? I felt kind of icky for the first few weeks, but still so much better than before. Now, over a month in, i'm starting to notice new food intolerances popping up (which is really annoying at the moment cause i've had a bad cold all week and can't tell what's food related, or meds related, or just plain lack of sleep related)

I think early on we have to completely readjust to what our bodies can handle and how they react. But, as long as I don't feel like crap all the time anymore, its good

we'll have to see how things are a few months from now

Peggy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.