Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Opinion?


Izzbell

Recommended Posts

Izzbell Newbie

Hi, I have a quite large amount of the symptoms of celiac disease, but I don't want to go to the doctor unless there could be a real chance I have it (they think I'm a hypochondriac because during my teen years I had asthma problems which they told me I was faking/not taking my drugs - until I was sent to hospital and those doctors found out I DID have something very wrong with my lungs).

The syptoms I have are very bad stomach pains (usually after I eat - sometimes its so bad I won't eat for a day, at the end of which I feel a lot better). I flit from having constipation, then diarrhea, and bloat. I feel very tired a lot of the time (not related to the days I can't eat!), and get mouth ulcers very regularly.

I know that there are diabetes and thyroid problems in my family (diabetes is more distant, my mother has thyroid problems, also her father died of bowel cancer at a young age, along with his sister.), along with other autoimmune diseases - asthma which is very common in my family.

Am I being a hypochondriac?

I'm thinking of having a trial gluten-free diet, to see how I feel. What do you think with the symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Liveenjoylife Apprentice
Hi, I have a quite large amount of the symptoms of celiac disease, but I don't want to go to the doctor unless there could be a real chance I have it (they think I'm a hypochondriac because during my teen years I had asthma problems which they told me I was faking/not taking my drugs - until I was sent to hospital and those doctors found out I DID have something very wrong with my lungs).

The syptoms I have are very bad stomach pains (usually after I eat - sometimes its so bad I won't eat for a day, at the end of which I feel a lot better). I flit from having constipation, then diarrhea, and bloat. I feel very tired a lot of the time (not related to the days I can't eat!), and get mouth ulcers very regularly.

I know that there are diabetes and thyroid problems in my family (diabetes is more distant, my mother has thyroid problems, also her father died of bowel cancer at a young age, along with his sister.), along with other autoimmune diseases - asthma which is very common in my family.

Am I being a hypochondriac?

I'm thinking of having a trial gluten-free diet, to see how I feel. What do you think with the symptoms?

You have alot going on there through genetics. I can't tell you if it is celiac disease or any thing else. Only a prof. like a doctor can tell you that. And that would have to be done through tests. Sorry I can't be of more help though.

FMcGee Explorer

You probably ought to just suck it up and ask the doctors to test you. If they're making you feel bad about looking after your health, they're not good doctors, and you should try to find another doctor, if you can. I think a lot of us understand what it's like to be accused of hypochondria, or to think others suspect us of it, but it's better to know than not to know.

Lau3turtle Newbie

In my experience anyone who finds any relief of their symptoms by going on a gluten free diet doesn't want to start eating gluten again to get an official diagnosis. Without being "properly" diagnosed you are potentially opening yourself up to being called a hypochondriac again.

I agree that any health professional who is using shaming tactics like calling you a hypochondriac is not one that I would trust, and if I were in your position I would find a doctor who takes you seriously and is willing to have you tested.

one more mile Contributor

In my experiance being a hypochondriac was my main symptom. My mom and doctor and dad and ex-husband, boyfriend and adult kid all thought I was one. I though I was one. Now they all sing a different tune. I do also.

I am no longer a hypochondriac.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.