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Did This Happen To You?

JBaby

By JBaby
in Coping with Celiac Disease

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JBaby Enthusiast
JBaby
Posted

I have been gluten free for 2 weeks, feeling great unless I accidentally ingest gluten or what now seems to be casein and or lactose, although those symptoms are not as bad. I am now having my 1st period 2 weeks in gluten free and midol isnt working. Usually, its takes only 1 tablet the first day and I am fine and aunt flow runs its course in 3-4 days. I am on day 3 and have taken 3 midols in 24 hours and I still have cramps. Will be taking anither one shortly. Is this normal or can this be a bad sign. Cramps are not good. Midol works temporarily. I had excrucuating cramps and vomiting as a teen monthly but it subsided, not sue how or why, maaybe tylenol helped it, I dont remember(I am now 38) and then went away when i started the pill. I have not been on any BC in maybe 7years and the cramps never came back as they were when i was teen. This is the worse its been since my late teens without the vomiting and intense pain but my lower back is killing me right now. Laying on a heating pad.

JBaby

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Mrs. Smith Explorer
Mrs. Smith
Posted

I had the same exact problem as a teen. Then by mid 20's the cramps just got so much less. My advice is to stay on the diet. Drink alot of water, the uterus is a muscle and needs water. My periods have gotten better although my PMS is worse. Some months being better than others. I have asked a similar question on here if anyone experiences PMS "gluten symptoms". I think gluten effects the whole body and when we mesturate we are a little weaker, maybe because of some vitamin defficiency. I take evening primrose oil. Taking fatty acids is suppost to help with the symptoms of cramping and PMS. Ive been gluten-free for 5 mos. and honestly everything is getting better although slowly. My cycle is finally regular, I have less pain and less time in the bathroom. So stick to it, nurture yourself the bad days like your a sick kid home from school. Oh and excercise!! That helps alot.

Takala Enthusiast
Takala
Posted

No, the opposite happened to me.

Try taking a calcium supplement and a magnesium supplement, along with a B vitamin complex. THIS is the primo condition that those cal/mag supplements really work on. Don't think that it is too late, get some calcium and magnesium into yourself pronto.

You might try natural bioidentical (NOT the artificial) progesterone cream as you hit the peri menopausal age of the late thirties/early forties, where your hormones can go beserk.

CaraLouise Explorer
CaraLouise
Posted

Make sure you check the gluten free status of Midol, at one time it contained wheat. Hope you feel better soon!

latteda Apprentice
latteda
Posted

My first period, a couple of weeks after going gluten-free, I actually didn't have any cramps. It was a little different in other ways, though. I had barely any flow for the first couple of days and then a moderately heavy flow following.

once and again Rookie
once and again
Posted

Your cramps may not be directly gluten related. There is evidence that women with celiac also have endometriosis or fibroid tumors. I had both and didn't realize they were related to celiac and gluten intolerance. Your ob-gyn should be able to tell if either of these is a problem.

samcarter Contributor
samcarter
Posted

My cramps are much, much worse when I've eaten dairy within a few days of my period. If i abstain from dairy completely, my period is so manageable my husband hardly knows I'm having it. ;)

I would suggest cutting dairy out of your diet, make sure you keep it out especially the week or two weeks leading up to your period, and see if things are better. Also, yes, calcium supplements (also neccessary if you're cutting out dairy) can help menstrual cramps as well.

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
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      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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