Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie~help Could This Celiac?


persistent~Tami

Recommended Posts

persistent~Tami Newbie

My story~ have always suffered from dark circles sometimes they would get darker ,which could never be explained.These I figured I'd be doomed with the rest of my life..At age 34 came down with Shingles.Have had trouble with yeast infection,vaginal and skin.

In Jan/09 my health seemed to deteriorate at a rapid rate ,one thing after another searching for answers I began to search the net.I came across this site after almost 4 months of searching,I grateful as I am ,I'm also sad to see so many people suffering for years without even a clue to what is really wrong..The good news is there is hope!

When symptoms started in Jan/09 ,I tried to seek medical help and was told it was Psychosomatic, Basically

it was in my head... go figure. :angry:

Symptoms started with general fatigue and maliase ,then skin hurt like I had the flu,easliy fatigued,easily bruising,tingling in hands,feet ,face,legs,bloating after eating ,acid reflex,panic attacks,insomnia,irritability,DX with new optical migraines,chest pain,cramping in hands and feet,muscle spasms random areas,throat pain,trouble swallowing at times,buzzing sensation in body,burning tongue sensation,irregular heart beat,fat pads on fingers wrinkling,increased back pain with no new obvious cause,fullness in ears with fluid retention,unexplained rashes felt like razor burn ,even though I had not shaved in these areas,trouble concentrating,memory problems,dizzy,nausea,eye floaters,brain fog,balance trouble,Fluctuating between severe diarrhea and constipation,left abdominal pain that seemed to be mild and then gets worse.

Since all this started ~I had my blood analysed ,it showed Candida,inflammation,paraites,uric acid,and Dx with Leaky Gut Syndrome,positive ANA with speckled pattern,low Vit D,xray of hand showed subchondral bone cyst,I've become lactose intolerance,Migraines from hell!! and all the above.

I have leaky Gut and Candida,but also feel this may all be due to having Celiac disease,I dont know where to start first ..do I kill the Candida ,do I heal the leaky gut or take care of the possible Celiac???????

Is is possible to take care of all at once?

I'm currenty taking~Priobiotic, Argentyn, Daily Health Vit,Imuzyme,OPC,Selenium,Vit E, colostrum,garlic tabs,vitex,Vit C,And NAC..

Previously was taking fish oil ,essential fatty acids ,MSM with chondrotin and was told not to take these by the Dr who did anaylysed my blood and recommended my current meds..

I've noticed a change but seems gradual, is this normal? how soon did you start to feel better? Is there anything you would recommend that Im not taking?

If you can shed some light ,any advice would be appreciated.Trying to get my life back and,its tuff when no one seems to give me a straight answer.

Thank you to all who responds,I appreciate any advice.. Sincerly Tami,dont forget to laugh its better than crying :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Liveenjoylife Apprentice

Well first off I want to say you do sound like you are putting up with a lot there. I am no doctor but some of the symptoms you explain I had with celiac disease. I didn't even have a doctor diagnose me, I did so my self. I have been on B12 and magnisium and calcium, multivitamin and removed all wheat from my diet and I am all better now. The horrbile symptoms went away. OR you could be dealing with Chrons disease. I would talk to your doctor about both because it could be either or.

persistent~Tami Newbie
Well first off I want to say you do sound like you are putting up with a lot there. I am no doctor but some of the symptoms you explain I had with celiac disease. I didn't even have a doctor diagnose me, I did so my self. I have been on B12 and magnisium and calcium, multivitamin and removed all wheat from my diet and I am all better now. The horrbile symptoms went away. OR you could be dealing with Chrons disease. I would talk to your doctor about both because it could be either or.

Thank you so much for your reply,I am trying to get in to my primary Dr at this moment to get tested.I also am doing self treatment and for the last 3 days have been gluten free ,i've noticed my energy level has increased and lymphnoids in armpit are starting to decrease in size.I definalty will check on the chrohns as well. Again thanks for you r support.

leadmeastray88 Contributor
Thank you so much for your reply,I am trying to get in to my primary Dr at this moment to get tested.I also am doing self treatment and for the last 3 days have been gluten free ,i've noticed my energy level has increased and lymphnoids in armpit are starting to decrease in size.I definalty will check on the chrohns as well. Again thanks for you r support.

To get tested you must be eating gluten or you'll risk getting a false negative.

Until testing is done, eat like you normally would. Once all testing is done then you can start. :)

gfb1 Rookie
[snip]

I had my blood analysed ,it showed Candida,inflammation,paraites,uric acid,and Dx with Leaky Gut Syndrome,positive ANA with speckled pattern,low Vit D,xray of hand showed subchondral bone cyst,I've become lactose intolerance,Migraines from hell!! and all the above.

I have leaky Gut and Candida,but also feel this may all be due to having Celiac disease,I dont know where to start first ..do I kill the Candida ,do I heal the leaky gut or take care of the possible Celiac???????

Is is possible to take care of all at once?

I'm currenty taking~Priobiotic, Argentyn, Daily Health Vit,Imuzyme,OPC,Selenium,Vit E, colostrum,garlic tabs,vitex,Vit C,And NAC..

Previously was taking fish oil ,essential fatty acids ,MSM with chondrotin and was told not to take these by the Dr who did anaylysed my blood and recommended my current meds..

[snip]

whew... you've got a ton to deal with... i almost hate to ask... but;

who tested for what?? you've got a small reference to "paraites" . did you mean "parasites"?? if so, which one/ones??

parasites in the blood are very serious. you need to check this out first thing to tackle, BEFORE all the rest.

i also don't intend to be mean-spirited, and want you to find the relief and help that you deserve..... but (yes, another but) the candida diagnosis is probably meaningless and you note that you have a "Dr" who "analyzed my blood and recommended my current meds.."

None of the things you mention are medicines. they are (at best) nutraceuticals -- with little or no effecitve action. is this a medical doctor (MD or DO), or something else?? its really lousy to be sick and feel abandoned by the medical establishment; but, you've got to hang in there and find a professional who can help.

everyone on this list has had some idiot-of-a-doctor say something stupid along the way (there are a couple of threads in the forum). just walk out the door, report them to the chamber of commerce and local/state doctors association -- then FIND SOMEONE NEW. we recently moved to scenic southern NJ and found a gastroenterologist who told us he is treating >150 celiac patients and has been a real blessing. they do exist and, sometimes, in the oddest places!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.