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Pregnant & Wondering What Is Wrong ?


youngdecor

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youngdecor Newbie

Hi everybody!!

I am 7.5 months pregnant & i keep losing weight...i have gained 4 lbs so far in my pregnancy and i struggle to keep that on !! she informed me that my baby is very small & we will need to do an ultrasound every to weeks to monitor him closely...my OBGYN is very frustrated ...she send me to a Dietition 2 months ago...nothing has been diaganosed....2 weeks ago she wondered if i may have Celiac Disease...but has not done any test to find out ???

Last week my OBGYN got results back from blood work i had done ...it showed that my malnutrition level is 34 ( Malnutrition levels are 36 - 48 )which she informed me i am border line.

I have had bloating for years & constipation ( i hate eating my stomach hurts so bad afterwards ...however i do for my baby ) ..i also have fatty liver ...i have acid reflux for yrs , severe arthritis, tingling in my hand & numbness , my menstrual periods have been irregular for a very long time ...i have 2 cousins that have Celiac Disease which is herederity! I really think this is what i have ????

I am very frustrated and wonder why the Dr's have not figured this out yet ??

Can somebody offer some serious advice ????? https://www.celiac.com/gluten-free/style_em...default/sad.gif


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MySuicidalTurtle Enthusiast

Try going on a gluten-free diet and see the results. You have a family history, so, it's worth a shot!

tarnalberry Community Regular

this is a tricky situation - if you want a medical diagnosis, you need to have formal testing, which means you need to continue eating wheat. but that will not help you gain weight if you do have it - which is certainly possible. it's a decision you'll have to make: try the diet for empiric evidence and the chance of being able to gain weight and absorb nutrients, and decide if you want to go back on gluten for three months later, or try to get tested right away (this week) for at least blood tests, and then go gluten free. (I'd do the former, but that's me, and I don't care about having a formal medical diagnosis.)

youngdecor Newbie

Thanks Guys !!

I got in touch with my Dietition yesterday ...i told her everything !!

She then got in touch with the Gastroenterologist i was seeing & he

ordered Celiac for today ...So that is great news !

I will keep you guys posted !!

P.S Thanks for the response & have a great day !!

youngdecor Newbie

**** Excuse that was a little unclear ....he ordered Celiac blood test for today !!!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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