Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pinpointing Problem Foods


KarenFe

Recommended Posts

KarenFe Contributor

I really appreciate all the help I've gotten on this site so far. I posted my test results in this thread - post #4.

https://www.celiac.com/gluten-free/index.ph...mp;#entry532702

Since I posted that thread about my negative celiac result from the biopsy, I decided to go completely gluten-free, dairy free, and egg free as a elimination diet. I've been eating fruits, veggies, black coffee, rice, and gluten-free oatmeal as well as a few other things which shouldn't cause a problem. My plan is to add one thing back in at a time.

Yesterday we went out of town for the day and while everyone ate pizza at a pizza restaurant, I had their french fries. That was for lunch yesterday. My bathroom "issues," while seeming to improve, have not really improved to a completely normal state and I understand that could take a while. Anyway, this morning my stomach was "gurgly" which I was not happy with. This afternoon I had the full fledged "D" again and my stomach is still making it's complaints.

The only thing that stands out to me as the possible culprit, considering my diet the last few days, are the french fries. (Edit: I also had red wine) It's possible they contained gluten and I ate them in hopeful ignorance. It's also possible for cross contamination when frying in the oil.

I am mostly wondering if my issues could be something else - I like to be totally sure. I know it will just take time and some more dietary experiments. I'll continue with my "dull" diet to make sure eggs and milk aren't problems to me, although I think one of them might be, but does the french fry incident "prove" my gluten sensitivity. Does it add to the proof that my tests already said?

I guess I'm sort of in denial or surprise at the new course my dietary life is taking me.

Thanks for reading this and for any help! :)

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

The fries probably did it. If they are fried with gluten then you are basically eating the gluten, too. Also, a percentage of people with Celiac Disease have reactions to oats, even if gluten-free. However, it sounds like you got sick soonish after the fries.

nasalady Contributor
Yesterday we went out of town for the day and while everyone ate pizza at a pizza restaurant, I had their french fries. That was for lunch yesterday. My bathroom "issues," while seeming to improve, have not really improved to a completely normal state and I understand that could take a while. Anyway, this morning my stomach was "gurgly" which I was not happy with. This afternoon I had the full fledged "D" again and my stomach is still making it's complaints.

The only thing that stands out to me as the possible culprit, considering my diet the last few days, are the french fries. (Edit: I also had red wine) It's possible they contained gluten and I ate them in hopeful ignorance. It's also possible for cross contamination when frying in the oil.

I am mostly wondering if my issues could be something else - I like to be totally sure. I know it will just take time and some more dietary experiments. I'll continue with my "dull" diet to make sure eggs and milk aren't problems to me, although I think one of them might be, but does the french fry incident "prove" my gluten sensitivity. Does it add to the proof that my tests already said?

I guess I'm sort of in denial or surprise at the new course my dietary life is taking me.

Thanks for reading this and for any help! :)

Karen

Hi Karen,

Yes, you probably shouldn't eat french fries from a restaurant unless you know that they don't fry breaded items in the same fryer. You should call the restaurant and ask them...it definitely would give you some important information one way or the other.

I was surprised to learn recently that wine can be a potential issue, not because wine itself has gluten (of course not!) but because some winemakers seal the oak wine barrels with wheat paste! Please see:

Open Original Shared Link

Perhaps if you call the restaurant, you might ask them about the wine and where it came from. You could then call the winery and ask them about wheat paste. After all, you might be one of the "extra sensitive" people who react to minute amounts of gluten. I certainly am!

Another possibility is that you are reacting to potatoes. Potatoes are a member of the nightshade family and a number of people on this forum have had to give up nightshades (also includes tomatoes and eggplant, I think?).

A third possibility is that you were accidently glutened a day or two earlier and that you're just now reacting. It usually takes me two or three days to have symptoms, although some people react to gluten in less than an hour. Right now I have a canker sore on my tongue and a REALLY bad headache, which tells me I was glutened sometime in the last few days. But I don't know where, because the only food I've eaten is food I've made myself at home.

However I DID drink some wine from a winery we've never tried before. My husband also has celiac disease and has Dermatitis Herpetiformis; he drank some of the same wine and his skin flared up. So we've now concluded that this winery probably uses wheat paste in their barrels. Because we can't think of any other possibility.

Anyway, I've said all of this to show how difficult it can be to track down exactly what the problem is, but you should definitely try, because it's important to figure out just what is causing your discomfort.

Good luck!

JoAnn

KarenFe Contributor

Thanks! I actually did call the restaurant before posting here, but there was a language barrier and I didn't get much information other than they have the fries delivered. It was a pizza place, so I imagine the fries very well could have been fried in "glutened" oil.

It definitely is hard to track down sources of gluten sometimes and even harder as I try to figure out what else bothers me in my diet.

Thanks so much for your replies. You've definitely been helpful.

Karen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,168
    • Most Online (within 30 mins)
      7,748

    watsonjennifer12
    Newest Member
    watsonjennifer12
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...