Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Has It - Do I?

3groovygirls

Recommended Posts

3groovygirls Contributor
3groovygirls
Posted

Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LDJofDenver Apprentice
LDJofDenver
Posted
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Very possibly. I mean, she had to get it from one parent's side or the other, it is genetic.

My adult son was diagnosed about 11 years ago -- I'd never heard of it, and at the time none of the doctors said anything to us about testing parents or siblings. Eventually, after 10 years of asking my personal physician to test me for it, with all my ongoing gut and touchy bowel problems, weird rashes (which I now know to be dermatitis herpetiformis), migraines, etc, he finally ordered the test. And, yup, I belong to the club as well. Irks me to no end that I've probably had it at least all my adult life, and that it took them 10 years to test even when I was asking!

Didn't mean to go on! My point is definitely get tested. If you have it, the sooner you know the better, in terms of healing.

nasalady Contributor
nasalady
Posted
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Please see the following topic in the Dermatitis Herpetiformis forum:

https://www.celiac.com/gluten-free/index.php?showtopic=57093

My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

I'm betting you are the one that your daughter inherited the problem from.

Good luck!

JoAnn

gfb1 Rookie
gfb1
Posted
My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

Open Original Shared Link

its really not that bad --- my brotherinlaw was beer-free for over a year when redbridge was released. he thought it was nectar of the gods...

however, it definitely WON'T help symptoms of consuming one-too-many...

:)

OptimisticMom42 Apprentice
OptimisticMom42
Posted

A lot of us found out we were celiacs by going gluten free thanks to the atkins diet and then could not return to the normal American diet. For me it was my 2008 New Years resolution to lose 30lbs. I did really well. Then gave up in July, was sick for six months before going to the dr. Three dr's latter, I'm a celiac, my mom's a celiac, my son is a celiac. Whoooo hooo! Atkins for life plus Fruity Pebbles :P

Welcome aboard, you're one of us!

OptimisticMom42

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    2. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

      There are eight essential B vitamins. They are all water soluble. Any excess of B vitamins is easily excreted by the kidneys. Thiamine is Vitamin B 1. Thiamine is safe and nontoxic even in high doses. Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily. The form of Thiamine in the supplements you mentioned is...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748
    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.