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Celiac And Dairy Question

pbc+celiac

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pbc+celiac Rookie
pbc+celiac
Posted

I have been gluten free for 8 weeks but continue with bloating and lower abdominal pain. I have been told it is probably a dairy issue.I am very strict with gluten and many neuro symptoms have decreased. I am finding it very hard to remove dairy totally from my diet. Well my question is if I continue consuming dairy will my small bowel heal or worsen? Is this just a symptom and not damaging? Any info would be helpful.

I was diagnosed by biopsy and blood with celiac.

Thanks in advance for any help.

Alicia

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Gemini Experienced
Gemini
Posted
I have been gluten free for 8 weeks but continue with bloating and lower abdominal pain. I have been told it is probably a dairy issue.I am very strict with gluten and many neuro symptoms have decreased. I am finding it very hard to remove dairy totally from my diet. Well my question is if I continue consuming dairy will my small bowel heal or worsen? Is this just a symptom and not damaging? Any info would be helpful.

I was diagnosed by biopsy and blood with celiac.

Thanks in advance for any help.

Alicia

Yes, going dairy light will not impede your recovery, if that is the level you can tolerate. I can drink milk in my tea and cream in my coffee as I only use a drop in each but I cannot tolerate a whole glass of milk or ice cream. I do not eat cold cereal so that is not an issue for me. I also can tolerate soft cheeses, like goat cheese, but have a harder time with cheddar's or more processed/harder cheeses. I eat a dairy light diet and have had no problems, unless I consume more and then the trouble begins....... :huh: Play around with amounts to see where your symptoms begin and end.

mushroom Proficient
mushroom
Posted

Dairy products contain both lactose (sugar) and casein (protein). Some of us can handle the digestion of casein fine, but it is lactose that bothers us because the enzyme to digest lactose is produced on the tips of the villi that are damaged by gluten. Until those recover lactose is often a problem. I could eat all cultured dairy products where most of the lactose has been consumed by the culture (cheese, yogurt, sour cream--even butter because most of the lactose is in the whey) but not milk, cream, ice cream. So do experiment and see how you do.

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      ttg iga high (646 mg/dl) other results are normal

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    • knitty kitty
      Is this celiac?

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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