Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Here I Go Again

cat3883

By cat3883
in Coping with Celiac Disease

Recommended Posts

cat3883 Explorer
cat3883
Posted

I was diagnosed with Celiac Disease in October 2008. I have been feeling really well but the last 3-4 weeks I have been having weird things happening. Over the weekend my ankles swelled (really big) and I have never had that happen to me. I felt achy and fatigued all over and my blood pressure was 99/48. I went to the doctor on Tues and he had me have bloodwork done. I got a call today and the nurse said my ANA and CRP are both positive. I have an appointment with a rheumatologist on June 11th. So does anyone here have RA? And do you think this could be something else. I really expected it to by my thyroid. Could hashimoto's have higher levels of CRP and ANA? HELP

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chasbari Apprentice
chasbari
Posted

I was initially diagnosed with RA 5 years before the celiac diagnosis. Since going paleo to manage my celiac my RA is slowly but surely lessening. I have had to stay away from all alternate grains and dairy in the early stages due to leaky gut issues but have been adjusting to the diet and am healing. My rheumatologist refuses to believe that I even have celiac and has been very uncooperative... refuses to believe that diet alone is making me so much better. The turnaround has been extraordinarily rapid. I cannot eat any nightshades (potatoes, tomatoes, eggplant and peppers) without triggering RA flares and salt also causes me to have a flare of inflammation in the hands especially. I pay attention to the sodium potassium intake as per paleo guidelines. I would recommend reading Cordain's book on it.

GFinDC Veteran
GFinDC
Posted

I used to have swelling ankles and feet a lot. It turned out I had an allergy to something in wines, and after I stopped drinking them rotten grape juices my ankles and feet stopped swelling up all the time. I've never had an ANA test so no help there. I think I read they aren't real specific indicators though. Kind of not a very reliable test for any specific disease or condition I believe.

Ok, this page at the LUPUS Foundation describes ANA tests and what they mean, or sometimes don't mean also:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.