Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Your Help Guys....


DVjorge

Recommended Posts

DVjorge Apprentice

Hi everybody,

I got the result of my biopsia which came back with only gastritis and h. pylori positive. When they ran the endoscopy to me, I was told my intestinal villi is atrophed. I have pseudodiarrhea, bad absorption and feel tired. I don't know if the biopsia can be reliable by itself or it is good idea to ask for blood antibody tests to exclude Celiac. Please, any advice is welcome. I am glad my biopsia didn't show celiac, but I don't feel good, and I want to be sure isn't gluten intolerance. Do you think a negative biopsia rule out the disease?

Thanks,

george.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Did they offer you a reason as to why your villi was atrophied? While the biopsy is considered the gold standard, it can miss damage, or can be read incorrectly. Having the blood tests may help you, but they cannot rule out celiac, as they can be unreliable, too.

LDJofDenver Apprentice
Hi everybody,

I got the result of my biopsia which came back with only gastritis and h. pylori positive. When they ran the endoscopy to me, I was told my intestinal villi is atrophed. I have pseudodiarrhea, bad absorption and feel tired. I don't know if the biopsia can be reliable by itself or it is good idea to ask for blood antibody tests to exclude Celiac. Please, any advice is welcome. I am glad my biopsia didn't show celiac, but I don't feel good, and I want to be sure isn't gluten intolerance. Do you think a negative biopsia rule out the disease?

Thanks,

george.

Hmmm. Who told you the biopsy did not show signs of celiac? Typically, atrophied intestinal villi are an indicator of celiac disease. My GI doc said my small bowel biopsy showed flattened villi which, she said, confirmed the Celiac Disease. Perhaps pick up your pathology report and get a second opinion at another G.I. doc?

Yes, sometimes even if you have it blood work comes back negative but you might want to do it anyway. (mine was positive) There are also genetic tests to determine (and rule out) your chances of being susceptible to celiac disease.

nora-n Rookie

back some years ago they did not diagnose celiac unless the villi were all gone.....

Your report sasy something like that, and does sound like celiac!

Nowadays you only need slightly flattened villi, or increased intraepithelial lymphcytes.

By the way, how many IEL's were at each villi tip? They have to count them and write that in the report.

read the food doc's blog www.thefooddoc.com , you have to surf around there until you find his blog.

nora

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.