Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free Diet


MaddieGsMom

Recommended Posts

MaddieGsMom Newbie

My DD was Dx in April and we have been gluten-free for a little over a month. She has been diagnosed with Failure to thrive, she seems very healthy, never complains about anything but is significantly smaller than her peers. We were using boost kids essentials which is gluten free, but expensive. Our celiac nutritionist told us to switch to Carnation instant breakfast. Just noticed that it is processed on equipment that processes wheat. It seems a little off. There are differing opinions on what is safe, and to go on to carnations site, they claim that their powder is gluten-free and their liquid only has 1ppm of barley gluten. Is it good enough to eat things with small chance of Cross contamination and see how it goes?? One of the things that my nutritionist said was that no one can be sure of cross contamination unless the government takes a stand and that if my DD blood tests were good I shouldn't worry. But I do. Any suggestions on topic of Cross Contamination would be great.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taweavmo3 Enthusiast

Hi! Welcome to the board, this is a great place to be. Personally, we stay away from products that are made in the same facility as wheat. I've tried them, but my dd reacts every time. The nutritionist is correct that you never know 100% of the time if a processed products has contamination, but if it made in the same facility as wheat....that definately increases the chances. And since your dd is just now starting the diet and trying to heal, I would try to avoid those products.

My dd is super sensitive, so most of the time I just stick to a plain, whole foods diet with as little processed food as possible. We eat meat, veggies, rice, fruit and tinkyada pasta. I make my own salad dressings, hummus, dips and sauces, etc. You can trust the gluten free companies that are made in dedicated facilities, and we use those for a quick treat if I don't have time to make something ahead of time. Kraft is another great company that will clearly list any gluten in their products, we love Kraft!

Also, now that she is on the diet and retaining nutrients, she may not need calorie boosters anymore. My dd was failure to thrive too, she was the same weight at age 3 that she was at 12 months old. But 3 months into the diet, she had gained 10 pounds. There are other ways to add in healthy fat and calories too.....olive oil, avacados, coconut milk ( I use this in baking or mix with other milk) coconut oil, nut butters, and almond meal to bake with if nuts aren't a problem.

Hope that helps some! The first few months are hard and frustrating, but it does get easier. This is a great site for info, it was a lifesaver for me in beginning. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,234
    • Most Online (within 30 mins)
      7,748

    AjaxandLynda
    Newest Member
    AjaxandLynda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.