Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Writing A Book


KaitiUSA

Recommended Posts

KaitiUSA Enthusiast

Hey all

I am in the midst of writing a book. I am putting a chapter or 2 in the book of celiac experiences from numerous people. If anybody would like to add theirs just email me and let me know. I would like at least 5 more but could use more. Thanks everyone :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hey, I think that's really cool, Katie...... ;)

After I get all the kids bathed and into bed tonight, I will try to stay awake to come down to the computer and write out my celiac story for you...... :P

Karen

KaitiUSA Enthusiast

awesome I look forward to hearing it Karen :D

Also anyone who has any suggestions on things they would like to see in a book...as a reader what would catch your eye?

Thanks B)

angel-jd1 Community Regular

A Personal Touch On....Celiac has done a great job with their book on celiac disease. They used the format that you are speaking of.

-Jessica :rolleyes:

ms-sillyak-screwed Enthusiast

Kaiti I think that a book is a wonderful idea. I have noticed many of your postings. You are a smart and beautiful young woman. Put you beautiful face on the cover, it will get attention. I'm glad you are going to spread the word about this hidden disease that doctors don't want to acknowledge because they can't get kickbacks from the drug companies. My doc threw a major fit :angry: and had a meltdown :angry: when I told him I was feeling better from enzymes. He called it <_< hocus pocus... I only stopped because of the cost factor.

I would share my story with you. Feel free to email me regarding what you are exactly looking for.

I noticed you have just been diagnosed with Graves Disease this March. I'm so sorry! I also have a serious thyroid problem too. Are you on thyroid medication? I'm having a hard time with it finding a balance in my system...

I wish you the very best with your quest and if I can help in anyway (I can design you a web site) or etc., please feel free to contact me. :)

KaitiUSA Enthusiast

Thank you everyone who has offered to help :D If you still want yours in it let me know I have a little bit of room for the stories left.

Canadian Karen Community Regular

Hey Kaiti,

I am halfway through writing out my celiac journey. Do you still want me to send it? It would probably be tomorrow.......

Let me know!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Karen

Yes most definitely. I am going to be trying to collect stories for another week or two. Thanks :D

Guest nini

I've been writing articles for my local health food co op for over a year now, and a lot of people keep telling me that I should write a book. I'd love to, but I don't really have that much time to devote to that! Have you thought about having a co-writer or something to that effect??? Just a thought! :D:D:D

Anyway, Since I've already got these articles written (and there is nothing saying I can't use them in a book) would you be interested in seeing what I've got so far? I don't know if you'd want to use it in your endeavor, or if you have any suggestions for a direction that I might go with it. Feel free to pm me or e-mail me at nisla@comcast.net

Guest ajlauer
Also anyone who has any suggestions on things they would like to see in a book...

Any of the common questions that get asked. An appendix with safe/forbidden foods.... what tests to tell the doctor about.... maybe a few recipes for bread, pizza dough, cookies, and the more common "but I can't give that up!!!" foods. Would be good to mention the gluten-friendly food companies, but that could become outdated pretty quickly.

You could also see if any of the gluten-free food companies would give you coupons to put in the book, or with the book.

KaitiUSA Enthusiast
Would be good to mention the gluten-friendly food companies, but that could become outdated pretty quickly.

That was one thing I was wondering about...I think I am going to put them in it and say this is correct to my knowledge but companies change their policies frequently and I will put the #'s by the company name as well.

flagbabyds Collaborator

You should have a list of some of the symptoms and how to get tested if you think that you might have the disease, and also a FAQ section because people have a lot of questions, and I know that you can't answer all of them in a book, but thebasic questions are the most helpful.

KaitiUSA Enthusiast

Yeah I have sections on symptoms, complications of ignoring the diet, cross contamination, a section for people with friends and loved ones with it, how to get tested& the diagnosis process,treatment-gluten free diet, personal experiences with celiac, and some other sections with manufacturers numbers and so forth. Thanks for the suggestion...helps to know what people want to read. :D

Deby Apprentice

Open Original Shared Link

This is a link to another celiac disease forum. There is a thread called our journeys to celiac disease. or something close to that. I know journey is in the title. You can look there for many postings about celiac disease dx.

KaitiUSA Enthusiast

Thanks Monica :D

I'll take a look at it...I can't use them unless I am given permission by them though.

stef-the-kicking-cuty Enthusiast

Because the gluten-friendly food companies will probably outdate pretty soon, you could also list the companies on a website and put the website adress in the book. It's easier to update a list on the internet, than in the book all the time. So the list would be more like an add to the book.

Fonda Newbie

Hi Kaiti, glad to hear you are writing a book!! Us newbies need all the info we can get our hands on at first. I have been gluten-free for a little over a month now and it is difficult. There needs to be a chapter about how to cope and grieving over foods and restaurants that are missed like Pizza Hut, Olive Garden, etc.... I used to love to eat and as the saying goes "Live to Eat, eat to live". I now have to learn to eat to live. Healthy!! I am still at that stage that I think a lot has been taken from me, until I get used to how all the new breads and everything taste.

Also, a little note that people could copy off to keep in their wallet/purse that really tells what and how important Celiac and the Celaic diet is so that we can give it to restaurant people, friends, relatives, etc. When I go to a restaurant it would be nice to have a little card (the restaurant card I have doesn't explain it) to hand to the waiter so you don't have to explain it to them, they get someone else out, you explain it to them. They could just take it back and all read it then know what to do. Does that make any sense. I tell people about Celiac and they think if I just don't eat bread, pizza, pasta all is well. WRONG!!!

Good Luck!!

Fonda

KaitiUSA Enthusiast

Here are some links to restaurant cards you can print out:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Thanks for your input :D

Fonda Newbie

Thanks Kaiti!!

KaitiUSA Enthusiast

Your welcome :D and I know what you mean about people thinking if you just avoid bread then your ok..they don't realize the extent of what gluten is in...celiac has been getting more notice though so that is at least good.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Latest Research
      2
    2. - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    3. - Mmoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    4. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,160
    • Most Online (within 30 mins)
      7,748

    Emina
    Newest Member
    Emina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.