Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet Causing Breastmilk Issues?


columbakss

Recommended Posts

columbakss Newbie

I recently, within the past 3-4 dyas, has found out that my celiac disease has reactivated. I have two sons, the youngest who is 7 months old. I have already successfully breastfed my oldest and never had any supply issues. Since I started back on a gluten free diet my milk supply has diminished, and I know its not my son going through a growth spurt. Is it the diet I am now on or has anyone else had any problems with this? I was also put on glucophage to aid in the wieght lodd from another condtion I have that makes me insluin resistent and hard to put off weight...is it the med? Any info would be greatly appreciated! I eat every 2-3 hours and feel stuffed all the time, could I still be under eating though?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

I was only gluten-free while nursing one of my 3 kids. I only noticed supply dips when I wasn't getting enough calories. The rule of thumb is you need about 500 extra calories a day to maintain your supply. So I had to eat almost 3000 calories a day.

Also, make sure you're drinking enough water. I felt like I couldn't get enough water while nursing.

There are supplements you can take to help with supply. I'd talk to your OB or pediatrician about them if you're worried. GL!

cat3883 Explorer

What do you mean by reactivated? Once you have celiac disease you always have it and must stay on a gluten free diet. Even without symptoms you are causing damage to yourself if you are eating gluten. You may not be absorbing nutrients because of the damaged villi, therefore, your child will not either. I would suggest calling the pediatrician. You may have to do some supplementing. Good luck to you and your son.

strawberrynin Newbie

One thing I found while breast feeding was that yeast helped increase production. Possibly grab a gluten-free pizza crust kit with yeast and try it? Since I don't eat bread, my yeast intake is nearly zero on a gluten-free diet. I can only imagine most are the same.

  • 2 weeks later...
Tica Apprentice
I recently, within the past 3-4 dyas, has found out that my celiac disease has reactivated. I have two sons, the youngest who is 7 months old. I have already successfully breastfed my oldest and never had any supply issues. Since I started back on a gluten free diet my milk supply has diminished, and I know its not my son going through a growth spurt. Is it the diet I am now on or has anyone else had any problems with this? I was also put on glucophage to aid in the wieght lodd from another condtion I have that makes me insluin resistent and hard to put off weight...is it the med? Any info would be greatly appreciated! I eat every 2-3 hours and feel stuffed all the time, could I still be under eating though?

You can try an herb by the name of Fenugreek. It increases milk supply. You can research it in Breastfeeding.com

Tica Apprentice
What do you mean by reactivated? Once you have celiac disease you always have it and must stay on a gluten free diet. Even without symptoms you are causing damage to yourself if you are eating gluten. You may not be absorbing nutrients because of the damaged villi, therefore, your child will not either. I would suggest calling the pediatrician. You may have to do some supplementing. Good luck to you and your son.

I can tell you from personal experience that pediatricians, and doctors in general, are NOT very knowledgeable when it comes to breastfeeding. Your best bet is to find a lactation consultant (LC). Supplementing will lower your milk production even more. A lactation consultant will help you increase your milk production without having to resort to formula. Try calling 1800-LaLeche for a LC near you.

What your pediatrician can do is monitor your babies weight gain and growth while you are working with the lactation consultant to resolve your milk supply issues.

Good Luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.